Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for June 2022

Gallstone Attack

Do other P.A./B12D sufferers have gallstone problems? I have had them many years ago, but yesterday brought a whole new meaning to the word pain! After...

Do other P.A./B12D sufferers have gallstone problems? I have had them many year...

Bassettbabe

•2 years ago

29 Replies

You wont believe this....well, you might 🤦‍♀️

I asked the doctors on monday to add some tests onto my follow up bloods my blood test appointment yesterday. The doctor agreed reluctantly 😞 I just want all...

I asked the doctors on monday to add some tests onto my follow up bloods my bloo...

Peppermints

•2 years ago

11 Replies

Ordering B12, needles and syringes for self injection.

Hi everyone, I want to begin self injection of B12 between visits to the surgery. Is there a link on this site I can go to with details of what to order, eg...

Hi everyone, I want to begin self injection of B12 between visits to the surgery...

brainchild

•2 years ago

5 Replies

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Thank you for saving my life and career

I started this journey with B12 deficiency back in fall of 2020. I thought there was no hope. PAS and this forum helped me back to normal. Thank you all so...

I started this journey with B12 deficiency back in fall of 2020. I thought ther...

B12life

•2 years ago

4 Replies

Grateful!! A Neurologist worth keeping!

I had my 5th neurology appointment this year with the same neurologist. He’s been amazing and today was a great appointment. At my last appointment 3 months...

I had my 5th neurology appointment this year with the same neurologist. He’s bee...

lambuth_eagle

•2 years ago

17 Replies

Out of date B12.

Hi all, hope everyone is doing well. I wonder if anyone knows about out of date hydroxycobalamin. I have a load 3 months out if date. I have not been with it...

Hi all, hope everyone is doing well. I wonder if anyone knows about out of date ...

Mannequin18

•2 years ago

12 Replies

High cholesterol

Is there any evidence that low levels of B12 Can cause high cholesterol… I also have an under active thyroid !!

Is there any evidence that low levels of B12 Can cause high cholesterol… I also...

Smethurst

•2 years ago

18 Replies

It Shouldn't Hurt: how to solve a few self-injection problems

Firstly, I am no expert. I am just someone who had B12 deficiency, and eventually, reluctantly, had to self inject in order to effectively control my B12...

Firstly, I am no expert. I am just someone who had B12 deficiency, and eventual...

Cherylclaire

Forum Support•2 years ago

15 Replies

Today is the day!

Hi everyone, I’ve received my parcel from Germany and supplies from the U.K. so think I’m going to do one tonight. Scared! I know it’s mind over matter. I...

Hi everyone, I’ve received my parcel from Germany and supplies from the U.K. so ...

Dp2000

•2 years ago

17 Replies

Help for Numbness and pain in hand, difficulty walking.

I have been injecting B12 twice a week or so 1ml or 0.3ml. There has been improvements, my question is does anyone have any suggestions for the numbness and...

I have been injecting B12 twice a week or so 1ml or 0.3ml. There has been improv...

RisingOne

•2 years ago

24 Replies

Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk

Update to the MHRA's view on Metformin and B12: Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk Decreased...

Update to the MHRA's view on Metformin and B12: Metformin and reduced vitamin...

helvella

•2 years ago

2 Replies

What if it's not pernicious anemia?

Hi all, A million thanks for all of the responses regarding my Dad and his suspected PA. I was quite overwhelmed by the response. Since then I have been...

Hi all, A million thanks for all of the responses regarding my Dad and his susp...

Needleandthread44

•2 years ago

8 Replies

B12 injection

I have asked this before but so foggy today. What is that clinic again in a posh shop in London. They do injection

I have asked this before but so foggy today. What is that clinic again in a posh...

donnabrain

•2 years ago

2 Replies

Twice a week Injection Frequency

Hello! I know we are all different but for those that did twice a week injections, how long did it take you to be able to move to once a week? I did once a...

Hello! I know we are all different but for those that did twice a week injection...

lambuth_eagle

•2 years ago

6 Replies

Rapid responses to daily subcutaneous B12 injections??

I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. (I’ve had 2 iron infusions so those levels are better now.) The B12 injections...

I was diagnosed with pernicious anemia and iron deficiency anemia 3 months ago. ...

faithrenae

•2 years ago

7 Replies

Accidental subcutaneous v. IM injection?

Hi everyone! — since I don’t have a PCP at the moment due to a move, I just completed my first self-injection. It was so much easier and more painless than it...

Hi everyone! — since I don’t have a PCP at the moment due to a move, I just comp...

still_elsewhere

•2 years ago

24 Replies

Test Results after discussion on here

Hi folks, hot of the press so to speak and on the attached screenshot. The doctor's comments are below this message. They are not what I was expecting,...

Hi folks, hot of the press so to speak and on the attached screenshot. The docto...

CyclingDog

•2 years ago

6 Replies

Test results

Hi everyone, I'm new to this whole Forum things so I thought I would just start anew thread for anybody who is interested in what my ultrasound test came out...

Hi everyone, I'm new to this whole Forum things so I thought I would just start...

EllaNore

•2 years ago

3 Replies

Versandapo

Hi, has anyone had an email advising they're being refunded what they've paid for B12 from Versandapo? I ordered some last week and have had a PayPal...

Hi, has anyone had an email advising they're being refunded what they've paid fo...

Annielecurie

•2 years ago

5 Replies

BrainFog Research

I couldn't find the post where someone mentioned that their brainfog was resolved by B1 (thiamine). Thanks to them I started taking 200 mcg / day and I had...

I couldn't find the post where someone mentioned that their brainfog was resolve...

B12life

•2 years ago

11 Replies

Turn the radio on?

Over the past few years it became my habit to switch the radio on in the kitchen as the first thing I did in the morning after coming downstairs. That...

Over the past few years it became my habit to switch the radio on in the kitchen...

rogergee

•2 years ago

13 Replies

Iron advice for my sister

Though you guys might be the best to ask. What is the best iron supplement going? My sister needed 2 iron infusions before surgery and could only get one due...

Though you guys might be the best to ask. What is the best iron supplement going...

Peppermints

•2 years ago

6 Replies

Help with diagnosing gut issues that suddenly started 18 months ago - Related to sub-optimal B12?

Hi - this is a repost from IBS Network community. I saw posts on here that lower than optimal B12 could be the cause of my gut issues, which dont' seem to be...

Hi - this is a repost from IBS Network community. I saw posts on here that lower...

ak_83

•2 years ago

17 Replies

Vitamin B-12>1,500 pg/mLStandard Range139 - 931 pg/mL

Good morning everyone. I had my first B12 recheck last night in the ER. Took myself there last night because I've been having a lot of abdominal pain along...

Good morning everyone. I had my first B12 recheck last night in the ER. Took my...

EllaNore

•2 years ago

41 Replies

CALLING ALL G.P.s

I often think that there must be a GP or two / other consultants who read these posts . I would love to hear what they have to say about Pernicious Anaemia...

I often think that there must be a GP or two / other consultants who read thes...

wedgewood

•2 years ago

20 Replies

Try asking family members to get B12 levels checked

I think I'm gaining the title of an interfering, obsessed older woman. My lovely cousin warned me to get my B12 tested. He had been told that he must eat...

I think I'm gaining the title of an interfering, obsessed older woman. My lov...

3rdNettydoon

•2 years ago

11 Replies

Ready for my fourth SI

I was pleased with myself after second SI. Third one though into my left thigh seemed different. I put needle in but found it a bit awkward getting right hand...

I was pleased with myself after second SI. Third one though into my left thigh s...

3rdNettydoon

•2 years ago

13 Replies

Confused.. b12, TSH, post covid syndrome and perimenopausal..

Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with...

Prior to having covid in Dec 2020, I was physically fit and healthy. Started Se...

B12-118

•2 years ago

8 Replies

Latest #s - Is my B12 sublingual 1000mcg daily working?

Hello, My Friends (who are most likely asleep as I write this from Ohio). On June 14th I had updated blood tests done that I specifically requested based on...

Hello, My Friends (who are most likely asleep as I write this from Ohio). On Ju...

Hidden

•2 years ago

12 Replies

Very high B12 but low folate

Hi all I've been experiencing weird off balance lurching sensations for over 2 months now. Plus weird neuro symptoms like tingling and pins and needles. Had...

Hi all I've been experiencing weird off balance lurching sensations for over 2...

Sparklingsunshine

•2 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2022

Gallstone Attack

You wont believe this....well, you might 🤦‍♀️

Ordering B12, needles and syringes for self injection.

Thank you for saving my life and career

Grateful!! A Neurologist worth keeping!

Out of date B12.

High cholesterol

It Shouldn't Hurt: how to solve a few self-injection problems

Today is the day!

Help for Numbness and pain in hand, difficulty walking.

Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk

What if it's not pernicious anemia?

B12 injection

Twice a week Injection Frequency

Rapid responses to daily subcutaneous B12 injections??

Accidental subcutaneous v. IM injection?

Test Results after discussion on here

Test results

Versandapo

BrainFog Research

Turn the radio on?

Iron advice for my sister

Help with diagnosing gut issues that suddenly started 18 months ago - Related to sub-optimal B12?

Vitamin B-12>1,500 pg/mLStandard Range139 - 931 pg/mL

CALLING ALL G.P.s

Try asking family members to get B12 levels checked

Ready for my fourth SI

Confused.. b12, TSH, post covid syndrome and perimenopausal..

Latest #s - Is my B12 sublingual 1000mcg daily working?

Very high B12 but low folate

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive