Twice a week Injection Frequency

[lambuth_eagle]

Hello! I know we are all different but for those that did twice a week injections, how long did it take you to be able to move to once a week?

I did once a week for 5 months then my neurologist moved me to twice a week which I’ve been doing for 3 months. I have a neurology appointment tomorrow so I decided to see how my body would respond if I tried to make it a week between injections. Made it to day 4 and noticed a slight increase in symptoms and now on day 6 and neuropathy is something fierce!

Just wondering how long it might take me to get to a point where I can actually do once a week without this kind of effect.

[Beginner2]

I think because you get symptoms after 4 days perhaps that is when you should your next injection. If you try to extend the time between them just add 1 day, try that for a few weeks. I would not extend them into symptoms again, damage could start again. How long it takes varies, I still need them every second day. When I miss a day, or worse still two days [fed up with injections, bored with doing them, need a break] I regret it, I sleep badly, stagger more, more pains in back.

[lambuth_eagle in reply to Beginner2]

Agree. I only tried it this time because I wanted to be able to tell my neurologist whether I’m ready to go once a week or not. I know when I see him tomorrow he will suggest trying to decrease the frequency and I wanted to be able to have the conversation about how this has gone rather than try it after my appointment and then have to just communicate via email.

[Nackapan in reply to lambuth_eagle]

I was trying to get to day 7 .Have been on 5-6 days for 2 yesrs.

Just concentrating on trying g to get on as best as possible now whatever tge frequency .

Only recently after nearly 4 yesrs am I injecting without too many 'side effects ' I.e before having more symptoms back.

Trying to stay on 'a level'

I agree totally to try going one day extra. Or stay what you are on.

I've made any changes very slowly.

At one point I wax in 2 weekly for a yesr before deciding to buy my own and increas them.

Originally I was aiming for monthly . Why ??

In Hindsight as going along with Gp.

Trying oral b12 to space them out.

Didn't work.

I do subcutaneous at home and IM at the surgery.

This works for me.

The IM one every 4-6 weeks doesn't last any longer than the sc ones .

I keep hoping it will !

[jade_s]

Never, yet, in the case of myself and relatives. It's all so individual, hard to say. I suspect the people that frequent the forum will be the ones that need more frequent intervals and haven't been able to reduce (much), so we might all be a bit biased here

[B12life in reply to jade_s]

me too. i have never been able to space out my injections to more than EOD. I do daily because I exercise so much. I tried weekly for 2 months and my symptoms returned. I've been on daily ever since. I'm doing cyano not Hydroxo.

[JanD236]

Twice a week suits me as I have no symptoms when doing this, so I’ll be staying at this frequency.

If I’ve tried to space out the injections I get a return of symptoms which take a couple of weeks worth of twice weekly injections to get rid of.