Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for October 2016

Are our test results and reports REALLY ours?

Asking this on a few sites guys... In response to a requst for the report of an ultrasound scan, which was clear, I was told that "it is not The health trusts...

Asking this on a few sites guys... In response to a requst for the report of an...

Hidden

•8 years ago

38 Replies

How long to feel better

Quite newly diagnosed. My b12 level was 51. Have had loading shots and got acne! Have not felt that much better yet, due my next shot next week . How long does...

Quite newly diagnosed. My b12 level was 51. Have had loading shots and got acne!...

Barnster

•8 years ago

8 Replies

Iron raised

Unsure if my raised iron is linked to my B12 defiency hopefully someone could advise. I have been on maintenance injections since April having 3 in total....

Unsure if my raised iron is linked to my B12 defiency hopefully someone could ad...

shuvs

•8 years ago

4 Replies

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B12 test doctors and told normal

Hi I went for a blood test on Tuesday , as some know I'd done one from Blue horizon which showed I was in sufficient with a amount of 170. Range is 145-250 , I...

Hi I went for a blood test on Tuesday , as some know I'd done one from Blue hori...

Ndobins

•8 years ago

21 Replies

Mold toxins and B12

Hey all, After looking at symptoms which match my own, one of the things I've stumbled upon which may very well fit my profile (including B12 deficiency) is...

Hey all, After looking at symptoms which match my own, one of the things I've st...

maddog7

•8 years ago

8 Replies

Really dizzy

I've self-injected twice, the second time was Monday evening. Not sure if it's a coincidence but I woke several times that night with the room spinning. Since...

I've self-injected twice, the second time was Monday evening. Not sure if it's a...

spacey1

•8 years ago

5 Replies

B12 advice

Hello I am a member of the Thyroid UK site and another member recommended that I sought advice on recent B12 result, which was 274. Many thanks.

Hello I am a member of the Thyroid UK site and another member recommended that I...

Janm51

•8 years ago

8 Replies

B12 low for a year doctors dithering about treatment - please help before I go mad

Hi I'm new here and don't normally join or post to websites but so fed up of being strung along by doctors who constantly tell me everything's normal when I...

Hi I'm new here and don't normally join or post to websites but so fed up of bei...

Clare184

•8 years ago

16 Replies

Active b13 mma homocysteine

Hi, would any body be able to tell me whether my taking of b12 will have affected the result of these please, I'm hoping probably not. I had 3 b12 injections 3...

Hi, would any body be able to tell me whether my taking of b12 will have affecte...

KathyN

•8 years ago

7 Replies

Is this negligence?

In another post I received some excellent advice (particularly from foggyme ) regarding putting in a letter to my gp asking for b12 injections to restart...

In another post I received some excellent advice (particularly from foggyme ) re...

Kenbowns

•8 years ago

27 Replies

just diagnosed

hi, I'm Emma and I've just been diagnosed with PA. I have had a pretty rough ride the past few months as this has hospitalised me, and caused me so much mental...

hi, I'm Emma and I've just been diagnosed with PA. I have had a pretty rough rid...

emmar153

•8 years ago

3 Replies

Some success with GP

I went to my docs this morning and she was really receptive to the research paper that Firebird suggested taking to the GP. She also, at my suggestion, had a...

I went to my docs this morning and she was really receptive to the research pape...

PaulaW61

•8 years ago

9 Replies

MTHFR and EBV results

Good Morning, It wasn't difficult to convince my Dr. to continue shots weekly instead of monthly when he witnessed my deteriorating condition. The tiredness...

Good Morning, It wasn't difficult to convince my Dr. to continue shots weekly in...

mislauren

•8 years ago

20 Replies

MRI show demyelination of frontal lobes

I had an MRI last week due to a poor score on a cognitive test after my complaints of brain fog. I got a CD copy of the MRI today and read that it showed...

I had an MRI last week due to a poor score on a cognitive test after my complain...

xyz011

•8 years ago

29 Replies

Baffling results and doc won't treat

Hey all, My blood results eventually came back, my antibody tests were both negative, H-Pylori was negative and MMA was bang in the middle of the normal range...

Hey all, My blood results eventually came back, my antibody tests were both nega...

maddog7

•8 years ago

21 Replies

Blood Test Readings

Hi clivealive, wedgewood, fbirder I have finally been given my blood test readings by my GP's surgery after numerous phone calls!! B12 - 483 Folate- 1.9 IF -...

Hi clivealive, wedgewood, fbirder I have finally been given my blood test readin...

DayDreams_1

•8 years ago

4 Replies

New info re having active b12 assayed

Hi. I wanted to let you all know that Viapath laboratory at St Thomas hospital now offers active b12, homocysteine and MMA tests by post. You need someone to...

Hi. I wanted to let you all know that Viapath laboratory at St Thomas hospital n...

Withattitude

•8 years ago

11 Replies

can't find my saved information to present to doctor

i had saved some posts to print out for my doctor regarding neuro symptoms to be treated with loading doses until no further improvement and lso regarding...

i had saved some posts to print out for my doctor regarding neuro symptoms to be...

Justified

•8 years ago

5 Replies

For info.. Increased side effects at start of treatment

After my first b12 injection, my neurological symptoms increased..I thought psychosomatic? But then I remembered a post by @clivealive. It actually means...

After my first b12 injection, my neurological symptoms increased..I thought psyc...

Cwalshox4

•8 years ago

2 Replies

Methylcobalamin incomplete

Methylcobalamin is an incomplete form of B12 and must be supplemented for pernicious anemia or B12 deficiency, according to a 2015 article in the European...

Methylcobalamin is an incomplete form of B12 and must be supplemented for pernic...

bquoss

•8 years ago

16 Replies

Has this anything to do with b12?

Can anyone tell me if any of these has anything to do with b12? Help much appreciated 😊😊😊 Thanks!

Can anyone tell me if any of these has anything to do with b12? Help much apprec...

BirgitteG

•8 years ago

7 Replies

Am I anemic?

Hi all, I am a 37 year old man with high serum folate levels of 26 and low b12 levels of 227 (doctor says in normal range). I suffer with crohns disease and...

Hi all, I am a 37 year old man with high serum folate levels of 26 and low b12 ...

Martin_N

•8 years ago

10 Replies

First B12 injection!

Hi guys, I've previously told you about a friend of mine who suffers from PA. I've also been suffering many of the symptoms myself too. I have read so many...

Hi guys, I've previously told you about a friend of mine who suffers from PA. I'...

Raven321

•8 years ago

6 Replies

Blood test results show my vitamin B12 level is 2000

I'm a Senior female who recently had a blood test that shows a high level of vitamin B-12. The level is 2000. I have never taken the B-12 shots only multi...

I'm a Senior female who recently had a blood test that shows a high level of vit...

Cher-2000

•8 years ago

29 Replies

Undiagnosed advice and thoughts

Afternoon Recently joined the thyroid page , due to UAT , my levels are good. Decided to get a private blood test as we would like another baby but my thyroid...

Afternoon Recently joined the thyroid page , due to UAT , my levels are good. D...

Ndobins

•8 years ago

30 Replies

B12 injection could it be the culprit?

My ferritin is normal so I would rule out hemochromatosis...but my iron/sat is high. The only thing I have taken are self administered injections for mildly...

My ferritin is normal so I would rule out hemochromatosis...but my iron/sat is h...

jchance123

•8 years ago

26 Replies

b12

Hi does anyone know if cityassays does b12 test thx

Lucieb01

•8 years ago

2 Replies

methylcobalamin

I gave the Sublingual tablets a try but at 1000 mg i found it seemed to affect my sleep as made me quite restless tossing and turning most of the night as if...

I gave the Sublingual tablets a try but at 1000 mg i found it seemed to affect m...

Advice1

•8 years ago

33 Replies

clueless

does anyone know what an iron infusion is my docter says it should boost my iron levels for a year

does anyone know what an iron infusion is my docter says it should boost my iron...

trixieboo1

•8 years ago

5 Replies

Confused as too what my b12 levels mean

Hi I'm a bit confused I have low b12 and folate..getting objections once a month only had one...feel no different...I asked what my b12 level was and was told...

Hi I'm a bit confused I have low b12 and folate..getting objections once a month...

Star58

•8 years ago

16 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2016

Are our test results and reports REALLY ours?

How long to feel better

Iron raised

B12 test doctors and told normal

Mold toxins and B12

Really dizzy

B12 advice

B12 low for a year doctors dithering about treatment - please help before I go mad

Active b13 mma homocysteine

Is this negligence?

just diagnosed

Some success with GP

MTHFR and EBV results

MRI show demyelination of frontal lobes

Baffling results and doc won't treat

Blood Test Readings

New info re having active b12 assayed

can't find my saved information to present to doctor

For info.. Increased side effects at start of treatment

Methylcobalamin incomplete

Has this anything to do with b12?

Am I anemic?

First B12 injection!

Blood test results show my vitamin B12 level is 2000

Undiagnosed advice and thoughts

B12 injection could it be the culprit?

b12

methylcobalamin

clueless

Confused as too what my b12 levels mean

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