Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for August 2016

Upsetting post on Martyn Hooper's blog

This one made me cry .... http://martynhooper.com/2016/08/19/a-family-affair/

This one made me cry .... http://martynhooper.com/2016/08/19/a-family-affair/ ...

Sleepybunny

•8 years ago

9 Replies

Newbie and Advice would be greatly appreciated

Good evening, I am new here and have recently been diagnosed as hypothyroid but this week I finally got a B12 test from my GP (I cheated and asked the nurse)...

Good evening, I am new here and have recently been diagnosed as hypothyroid but ...

Maud04

•8 years ago

13 Replies

Advice please following useless GP appointment

Hi all, I was diagnosed with ME/CFS 6 years ago (my B12 was 104 at that time but never mentioned by my GP). Over the last 3 years I've gradually felt worse,...

Hi all, I was diagnosed with ME/CFS 6 years ago (my B12 was 104 at that time but...

Bev11

•8 years ago

5 Replies

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help with supplements

Hi just looking for advice on supplements. My B12 was just within range 230 i think. Anyway to cut a long story short, one dr advised supplementing with over...

Hi just looking for advice on supplements. My B12 was just within range 230 i th...

Hidden

•8 years ago

33 Replies

menopause and B12 injections

I am going through the menopause, I have been having B12 injections for over a year. Two weeks before my injection is due I start dropping to sleep every time...

I am going through the menopause, I have been having B12 injections for over a y...

littlebopeep2

•8 years ago

10 Replies

Struggling to know what to do now: B12 deficiency

Allo. I was diagnosed with a B12 Deficiency 2 years ago in early August. I had 6 injections over 2 weeks, then was tested for PA which came back negative. My...

Allo. I was diagnosed with a B12 Deficiency 2 years ago in early August. I had 6...

eldelphia

•8 years ago

3 Replies

buying Neo-Cytamen online

Hi I live in Ireland and have B12 Defiencey (diagnosed) for 7 year but probably had it for years undiagnosed. I can only get the injection every 12 weeks as my...

Hi I live in Ireland and have B12 Defiencey (diagnosed) for 7 year but probably ...

suzykg1

•8 years ago

4 Replies

Am I expecting too much too soon?

Hi, hoping for some thoughts....I know everyone is different, but I'm a little concerned that having started on daily injections of hydrocobalimin, my 'burning...

Hi, hoping for some thoughts....I know everyone is different, but I'm a little c...

ShirleyMurray

•8 years ago

8 Replies

A certain antibiotic possibly contraindicated for those with b12d--nerve damage risk

My doctor prescribed nitrofurantoin for a bladder infection. One serious side effect listed is perpheral neuropathy and nerve damage in arms and legs. I...

My doctor prescribed nitrofurantoin for a bladder infection. One serious side ef...

Allyson1

•8 years ago

31 Replies

Crossover symptoms and Advice

Hi Everyone, I know this forum provides valuable advice and support for people with B12 defficiency and Pernicious Anemia but we must all be careful about the...

Hi Everyone, I know this forum provides valuable advice and support for people w...

Susan523

•8 years ago

20 Replies

Daughter in law ...

Daughter in law had another episode for want of a better word ! Started with anxiety not too bad then through the afternoon changed into argumentative...

Daughter in law had another episode for want of a better word ! Started with anx...

networker

•8 years ago

12 Replies

Is Hydroxocobalamin im suitable for sub cut?

So I finally got to see my gp following the haematologist appointment last Monday and now have my prescription of Ampoules. They state on the box that they are...

So I finally got to see my gp following the haematologist appointment last Monda...

CarpaBob

•8 years ago

6 Replies

Update after self injecting and another blood test! B12 now >2000

Well it's been a few months since I was told my b12 was 153 and I was self injecting. I still have pins and needles in hands and extreme tiredness! I'm also so...

Well it's been a few months since I was told my b12 was 153 and I was self injec...

Kells35

•8 years ago

23 Replies

B12 and the lack of understanding!

I have been feeling oh so tired and I know it is because my GP has refused to reconsider the injections I was having earlier in the year. He said my levels...

I have been feeling oh so tired and I know it is because my GP has refused to re...

ck7027

•8 years ago

6 Replies

Epstein barr virus? -B12? whats going on?

Right after fighting with my doctors regarding my worsening symptoms (I'm diagnosed with coeliac disease and thyroid disease-hashimoto's- both managed without...

Right after fighting with my doctors regarding my worsening symptoms (I'm diagno...

autoimmunekate

•8 years ago

28 Replies

B12 tablets

Could anyone help me I'm getting conflicting views on the amount of sub lingual B12 tablets a person can take my understanding is that it's harmless as it just...

Could anyone help me I'm getting conflicting views on the amount of sub lingual ...

networker

•8 years ago

13 Replies

Intrinsic factor antibody test ranges??

I'm b12 deficient first diagnosed in 2012 by a reluctant GP. He ordered an intrinsic antibody test which was 2.4 Southend lab range 0-6. So this was normal....

I'm b12 deficient first diagnosed in 2012 by a reluctant GP. He ordered an intri...

Lizzy40

•8 years ago

6 Replies

Bloods

Hi guys Can someone pls advise on following which I received today Folate 8.9 (3-20) B12 153 (200-790) Ferritin 26.1 (10-250) Do either of these need action...

Hi guys Can someone pls advise on following which I received today Folate 8.9 ...

Carolyn1964

•8 years ago

6 Replies

Help and advise 3 year old results

My three year old girl has been having health issues and growth issues since birth , she recently went for an operation to remove a birthmark and they couldn't...

My three year old girl has been having health issues and growth issues since bir...

Mrs_harris

•8 years ago

2 Replies

Getting B12 tested on B12 Injection course?

Hello, I am due to get my b12 tested on the 26th of August, But I will have been on a b12 injection course of 2 injections a week for 3 weeks. Silly question,...

Hello, I am due to get my b12 tested on the 26th of August, But I will have been...

Rhsana

•8 years ago

14 Replies

Can I fill a 1ml syringe with a fixed 8mm needle?

I know this sounds thick, but if I manage to buy ampoules of B12, can I fill them using a fixed insulin syringe with an 8mm hypodermic? And can anyone direct...

I know this sounds thick, but if I manage to buy ampoules of B12, can I fill the...

Schenks

•8 years ago

7 Replies

Pins and needles after b12

hi there, so I was recently diagnosed as being deficient in b12. I do not test positive for intrinsic factor but for parietal cell antibody. I had a number of...

hi there, so I was recently diagnosed as being deficient in b12. I do not test p...

kel226

•8 years ago

7 Replies

Dad has GP appointment - some info required to be armed!

Hi folks. My dad has PA and has been dreadfully poorly since been given Amoxicillin for a chest infection - now on his knees with exhaustion - this from a man...

Hi folks. My dad has PA and has been dreadfully poorly since been given Amoxici...

sandramcgregor

•8 years ago

16 Replies

update on gp

neurologist prescribed an extra course of one b12 injection for four weeks. Done, and I feel great. saw gp tonight to ask how I could maintain this and she...

neurologist prescribed an extra course of one b12 injection for four weeks. Done...

jillc39

•8 years ago

3 Replies

Potassium and B12 injections

I have recently discovered I have a B12 deficiency and so I have been doing some research. I have heard people saying that the B12 injections caused them to...

I have recently discovered I have a B12 deficiency and so I have been doing some...

Alison-Thomas

•8 years ago

32 Replies

Bad allergies with parietal cell antibodies?

Hey it's me again! For those of you that have this antibody, do you notice bad allergies or intolerance to food and also the every day environment. I ask...

Hey it's me again! For those of you that have this antibody, do you notice bad a...

Ladyawkward

•8 years ago

1 Reply

looking for a private doctor in South East

Hi, I am new here, and I was wondering if anyone could tell me where I could find a private doctor who would test me for PA, and give treatment if necessary. I...

Hi, I am new here, and I was wondering if anyone could tell me where I could fin...

maz66

•8 years ago

2 Replies

Vit B12 deficiency and pregnancy

My daughter is 25 and is 18 weeks pregnant. She has had symptoms of Vitamin B12 deficiency for some time and we finally got the GP to agree to check her levels...

My daughter is 25 and is 18 weeks pregnant. She has had symptoms of Vitamin B12 ...

Snowflake16

•8 years ago

11 Replies

Ferritin levels and B12 recovery

Will optimum ferritin levels eg 80+ help to speed up the recovery of my red blood cell production? My last ferritin level was 42. I've been prescribed ferrous...

Will optimum ferritin levels eg 80+ help to speed up the recovery of my red bloo...

Booksellercate

•8 years ago

23 Replies

Help!!

I feel like I'm losing the battle every day - I wake up sooo positive and then wham feel awful - legs are now so weak I can hardly shuffle - the stairs are...

I feel like I'm losing the battle every day - I wake up sooo positive and then w...

Carolyn1964

•8 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2016

Upsetting post on Martyn Hooper's blog

Newbie and Advice would be greatly appreciated

Advice please following useless GP appointment

help with supplements

menopause and B12 injections

Struggling to know what to do now: B12 deficiency

buying Neo-Cytamen online

Am I expecting too much too soon?

A certain antibiotic possibly contraindicated for those with b12d--nerve damage risk

Crossover symptoms and Advice

Daughter in law ...

Is Hydroxocobalamin im suitable for sub cut?

Update after self injecting and another blood test! B12 now >2000

B12 and the lack of understanding!

Epstein barr virus? -B12? whats going on?

B12 tablets

Intrinsic factor antibody test ranges??

Bloods

Help and advise 3 year old results

Getting B12 tested on B12 Injection course?

Can I fill a 1ml syringe with a fixed 8mm needle?

Pins and needles after b12

Dad has GP appointment - some info required to be armed!

update on gp

Potassium and B12 injections

Bad allergies with parietal cell antibodies?

looking for a private doctor in South East

Vit B12 deficiency and pregnancy

Ferritin levels and B12 recovery

Help!!

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