I know this forum provides valuable advice and support for people with B12 defficiency and Pernicious Anemia but we must all be careful about the advice we give.
I turned to the site when I was diagnosed with PA with a level of vitamin B12 at 80! I had nearly every symptom on the list and was started on a loading dose followed by 3 monthly injections. I seemed to improve for a while but then I began to deteriorate, I had terrible pains in my feet, I would cry just trying to stand up, I ached and could sleep 18+hrs a day along with many other symptoms. If I had listened to some of the advice I was given I too would have been trying to self inject and take sublingual B12 (I am not saying that this is not right for some people). I continued to see my GP and had referrals left right and centre: neurologists, rheumatologists, endocrinologists & Immunologists. I had many diagnoses including CFS, fibromialgial & ME to name but a few and I was even told that I should be grateful that I did not have cancer; I would just have to learn to live with my condition, but I knew they were wrong! After a referral to a third rheumatologists he tested my Parathyroid function (Please note this is completely different to thyroid), my levels were 6 times what they should have been!!! He suggested being re tested in 3 months, but after some research on the internet I went to see my GP where I was re tested immediately, my levels were sky high. I was then referred to an endocrinologists who said that it could not possibly be my parathyroid, but again I was certain, everything fit. I contacted the Norman Parathyroid Center in Tampa USA and downloaded their app. They were 99% sure that I had a parathyroid adenoma and that a 20 min operation could not only change my life but save it. My husband said that we had to try it so we booked and paid for my surgery; 6 weeks later we travelled to the USA. The rest is history, 2 tumours removed and my life has changed completely. Once I had recovered from the surgery the difference was unbelievable, the fatigue completley gone, all the aches and pains disappeared etc etc. I am lucky that at the moment I get my B12 injections every 6 weeks, as if I don't it's a bit like talking to a crossword puzzle 😀 But the fatigue and the aches and pains have all gone.
My point is, there are many conditions with similar/the same symptoms and we need to be aware when we give advice that we could be stopping someone from getting a full diagnosis. My condition was slightly different to some, as in I had normal/low calcium rather than high, so my diagnosis was "normo calcemic primary hyperparathyroidism". I am not sure that in the UK this is tested for as routine or that we have the necessary experts to treat it but if you have a good GP then it is worth asking for the test.
A few people may remember the family that won the huge Euromillions jackpot a few weeks ago, no that wasn't me, and that the lady had just returned from surgery in the USA, she also had hyperparathyroidism! If your symptoms of B12 are not manageable then it is worth considering.
There is lots of valuable information on their website and on YouTube.
If I had believed what some of the Dr's had told me then I may not be here, and I would not have the quality of life that I have now. I knew in my heart of hearts that something was not right and if you believe that then you have to fight.
If I can help anybody or answer any questions please feel free to ask.