Hi all, I was diagnosed with ME/CFS 6 years ago (my B12 was 104 at that time but never mentioned by my GP).
Over the last 3 years I've gradually felt worse, more exhausted, dizzy etc. In June this year Re-tested my bloods incl B12 & found it was so low they couldn't even give a proper reading. I had 5 loading shots, felt slightly better after a few weeks but then started feeling worse again. My grandma had PA so my GP tested IFA & PCA. They both came back negative so now my GP says not PA, just take oral b12 & retest in a year & prob CFS making me feel worse. I feel like I've been fobbed off but he says I'd be feeling better now if the injections were helping! Any thoughts? (I thought maybe I just need more)
Any advice what to do now please?
I know PA tests r unreliable so am wondering whether to pay Medichecks to rerun both tests!! Maybe get a positive & then can go back to GP? Any thoughts please?