Help!!: I feel like I'm losing the... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

Help!!

Carolyn1964 profile image
10 Replies

I feel like I'm losing the battle every day - I wake up sooo positive and then wham feel awful - legs are now so weak I can hardly shuffle - the stairs are becoming increasingly difficult - my mood is very low and I have never ever been depressed in my life - I just want to lie in my bed and do nothing!!! My new b12 sublingual solar nuggets have just arrived so taken one of those and have an injection this aft - how much longer will this go on??????? So desperate cud just sob

Written by
Carolyn1964 profile image
Carolyn1964
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Booksellercate profile image
Booksellercate

How long have you been injecting?

I'm just shy of 3 month's of daily injections and I've now had 10 days in a row of my legs not feeling like jelly and minimal pain too. Hopefully I've turned a corner but these are often the timescales you have to take into account when recovering.

Carolyn1964 profile image
Carolyn1964 in reply toBooksellercate

I'm only on 3 injections a week as that's all dr will do and only started that last week. Also take 1 b12 sublingual, berrocca and b12 boost spray

Booksellercate profile image
Booksellercate in reply toCarolyn1964

Pain and weakness in joints are classified as neurological symptoms I believe-and these can take a little while to recover from on a solid treatment plan.

Whilst taking high levels of B12 it's a good idea to ensure everything else is balanced-a good vitamin B complex and perhaps a little extra folate and potassium (from food)...and even iron as B12 uses all of these as it sets to work.

Carolyn1964 profile image
Carolyn1964 in reply toBooksellercate

Is Berocca a good b complex to take?

Booksellercate profile image
Booksellercate in reply toCarolyn1964

I'm not sure what it contains and in what quantity. You need: Thiamin, Riboflavin, Niacin, B6 and folate/folic acid at least. I agree with the comment below-it might be worth switching to a good B-complex supplement to make sure this is covered and all is in balanced quantities with any extra ingredients to aid absorption.

Thorne Basic is highly recommended if you can afford it. If not brands such as Solgar produce B-complex supplements.

PAS-admin profile image
PAS-adminPartner in reply toBooksellercate

I order all my supps from iHerb, lots cheaper :) In Europe most supps are highly overpriced.

PAS-admin profile image
PAS-adminPartner in reply toCarolyn1964

I'm sorry you feel so bad, but I'm afraid I can't say anything else than wait. It takes time to recover, especially if the deficiency has been there for a long time. It took 15 injections (3 a week) for me to even feel something, and that was only minor.

The Solgar is the methyl? Then try those in stead of the spray. I don't know the berrocca, if it's any good (maybe someone else?) bit you could try switching to a high quality B-complex (IMHO the best one is Thorne Basic B-complex) Symptoms can increase in the first couple of weeks, that's 'normal' so try not too worry too much. And read also all the answers you got to your other posts, lots of tips and info as well in there. Take care!

Carolyn1964 profile image
Carolyn1964 in reply toPAS-admin

Many thanks - all helps and makes me feel not so alone

I am so amazed that a simple vitamin deficiency can do so much harm and that this test is constantly overlooked by doctors if I had not self diagnosed I'd be an even worse state than I am now

PAS-admin profile image
PAS-adminPartner in reply toCarolyn1964

I know...nothing simple about a B12 deficiency. So many systems in the body depend on it. It's a shame (understatement) that is takes so long to be considered by many doctors as a cause of symptoms.

PAS-admin profile image
PAS-adminPartner

One what? B-complex? Thorne Basic B-complex. Nothing in there except B-vitamins.

Not what you're looking for?

You may also like...

Help!

Hi This is the 1st time I have posted here and would love some advice. I have B12 deficiency and...
Jojo197 profile image

Help!

I am in about week 6 of weekly self injections. Usually for a few days after I have increased...
sammisboys profile image

Help please

Hi, I have written a few times here to find out about how to deal with newly diagnosed PA. Everyone...
natcap2 profile image

Help 😲

I have had a text from my surgery saying there is no evidence to say that B12 injections are any...
Gillyhe profile image

I’m a self diagnosed newby please help

Hi all here goes, I have been poorly for around 12 months, starting off with extreme fatigue. I’m a...
Jsweedish profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.