Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,422 posts

All posts for June 2015

inactive b12 sitting in liver

Hi Guys! I had puzzled for some time over the question of readings in the serum level, because I couldn't quite understand how it was used by the body....

Hi Guys! I had puzzled for some time over the question of readings in the serum ...

•9 years ago

B12 on holiday

Hi I'm off to Cape Town in September (from Heathrow). I'm going to take my b12, syringes and needles, I thought syringes in suitcase but b12 in cabin bag cos...

Hi I'm off to Cape Town in September (from Heathrow). I'm going to take my b12,...

•9 years ago

Success

Hi all Just an update from last post. I saw my GP who listened to me and although stated that my B12 level at 400 was within normal limits the drop from 2000...

Hi all Just an update from last post. I saw my GP who listened to me and althoug...

•9 years ago

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End of the NHS road - I need to inject myself

WARNING THIS POST CONTAINS DETAILS OF BEHAVIOUR BY DOCTOR THAT SOME MAY FIND UPSETTING. After nearly 13 months I got my appointment with the haematologist. He...

WARNING THIS POST CONTAINS DETAILS OF BEHAVIOUR BY DOCTOR THAT SOME MAY FIND UPS...

•9 years ago

Interesting Read - B12 Safe at High Doses

Hi, I found this a very interesting read. Please let me know if the link doesn't work for you....

Hi, I found this a very interesting read. Please let me know if the link does...

AutoimmuneAnnie

•9 years ago

RDW Range B12

Another GP described, As my RDW is 13.1 Range 11-14.50 you would have noticed a rise in the Red cell Distribution Width, so this is why the conclusion was...

Another GP described, As my RDW is 13.1 Range 11-14.50 you would have notic...

•9 years ago

Private GP appointment

Hi, After several attempts at getting my GP to listen to me re my PA and RA ongoing symptoms, I decided to go private and see one of the Drs on the PAS...

Hi, After several attempts at getting my GP to listen to me re my PA and RA ongo...

•9 years ago

homocysteine serum test or methylmalonic Acid Test.

My GP says Well inside the range B12 Serum 155pg/L 130 -800pg/L ( Generous Range) Asked about this and got a reply from 1 doctor 4 doctors agreed in the...

My GP says Well inside the range B12 Serum 155pg/L 130 -800pg/L ( Generous ...

•9 years ago

I am fuming!!

Yesterday I went to the doctors about knocking my 2 month jabs back up to three. In the course of our conversation he said he wasn't aware I had PA!!! How can...

Yesterday I went to the doctors about knocking my 2 month jabs back up to three....

•9 years ago

Stopped injections

I have had b12 injections for 3 years for low b12 after an awful time fighting to get the treatment I needed. I was really ill with a lot of neurological...

I have had b12 injections for 3 years for low b12 after an awful time fighting t...

•9 years ago

Homocysteine

As i am in the "Normal Low Range" although my GP insists i am Normal B12 Range 155ng/L Range 130-800 could anyone explain if Homocysteine level tests is...

As i am in the "Normal Low Range" although my GP insists i am Normal B12 Range ...

•9 years ago

Missing Link found between brain, immune system: major disease implications

This has just been posted on the Gluten Free site. 'Missing link found between brain, immune system; major disease implications' :...

This has just been posted on the Gluten Free site. 'Missing link found between ...

•9 years ago

Don't understand...

Blood results have come back today, I've stopped my iron now for about 6 weeks, two years ago i had a ferritin level of 2, it's VERY slowly crept up and was at...

Blood results have come back today, I've stopped my iron now for about 6 weeks, ...

•9 years ago

Methylcobalamin question

So far the mighty google is failing to give me an answer, so I'm hoping one of you good people know. How long can injectable methylcobalamin stay...

So far the mighty google is failing to give me an answer, so I'm hoping one of y...

•9 years ago

B12 Infusions

Hi does anyone know of anywhere in or around Bedfordshire where you can get B12 Infusions?

Hi does anyone know of anywhere in or around Bedfordshire where you can get B12 ...

•9 years ago

B12 Deficiency - advice needed!

Apologies for the long post... I am a 35 year old female, and about a year and a half ago I had iron-deficient anaemia. I was treated with iron supplements and...

Apologies for the long post... I am a 35 year old female, and about a year and a...

•9 years ago

15yr old daughter B12?

Hi my daughter had a reading of 174 and Dr gave her oral Cyanocobalamin 50mcg to take daily. This has been for 12 weeks. Her b12 reading is now 247. Should...

Hi my daughter had a reading of 174 and Dr gave her oral Cyanocobalamin 50mcg to...

•9 years ago

B 12 injections; Slow Recovery. blood test?

Hi all, sorry for the long drawn out post; but Hope you can help? Had my 6th, loading B12 injection yesterday. I'm not getting any real improvement from having...

Hi all, sorry for the long drawn out post; but Hope you can help? Had my 6th, lo...

•9 years ago

Desperate & scared

Hi, I have had PA since 1992, it was discovered during one of my pregnancies at the hospital. The Consultant I was under (a professor) he told my Dr i needed...

Hi, I have had PA since 1992, it was discovered during one of my pregnancies at ...

•9 years ago

B12 Problems and Test

Hey everyone: I think that I have lack of vitamin B12 and Iron- How do I get the test and how long should I been waiting for?

Hey everyone: I think that I have lack of vitamin B12 and Iron- How do I get the...

•9 years ago

High B12 Level

Hi my Practice Nurse told me today that my B12 levels were high on my last blood tests. Can anyone advise as to why this would be? I was in the middle of my 12...

Hi my Practice Nurse told me today that my B12 levels were high on my last blood...

•9 years ago

Thinking of starting B12 supplements, has anyone got any advice?

Hi there peeps, I'm going someone can give me advice on where to begin when looking at supplementing B12 myself. Oct last year B12 was 266 (200-680). April...

Hi there peeps, I'm going someone can give me advice on where to begin when look...

•9 years ago

5 Years

I have not been on site for 5 years. I am appalled at the lack of progress with this problem. Why is this? Why despite meetings and member and lobbying this...

I have not been on site for 5 years. I am appalled at the lack of progress with...

•9 years ago

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