Ataxia Specialist In Scotland: Hi Everyone been a... - Ataxia UK

Ataxia UK
3,021 members2,941 posts

Ataxia Specialist In Scotland

Hi Everyone been a member for a few months now and taken great support from your posts. I have cerebellar ataxia but as yet no firm diagnosis of the type. Does anyine see a ataxia specialist in Scotland? Thanks x

10 Replies
oldestnewest

🙂 See ataxia.org.uk and click on MENU. Search for ‘ataxia centres and specialists’. Click on the first option, and scroll down to ‘clinicians with an interest in ataxia’ to find contact details of a Neurologist in Edinburgh 🙂xB

1 like
Reply

Thanks there is only one listed for Scotland. Does anyone have any experience of seeing someone in Scotland? Thanks x

Reply

Hi my husband sees neurologist at our local hospital and between these visits the neurologist nurse. They don't really do much though just monitor his condition. There used to be a specialist in Edinburgh but i think the nearest is Newcastle now

1 like
Reply

Hi my wife has been seeing Dr Jack but he only knows so much so we got him to refere her to Newcastle Ataxia clinic where more is being done so far only had to travel down once but would recommend getting refered to Newcastle

1 like
Reply

I see Dr Jack here in Ayrshire but he covers 4 hospitals 1 of them is in Glasgow and your own doctor has to refer you!! Have to say he's excellent I've been seeing him for years now hope this helps!

1 like
Reply

Mum and I just see neurologist at local hospital- different hospitals. Mums had never seen an SCA6 patient. Didn’t really value him to be honest and in the end I just said we would contact him if we were concerned etc. Theres a linit to how much time you can take off work and travel to have your finger going from nose to his fingers.😐

1 like
Reply

The specialised top ataxia Specialised research Professors and neurology are unfortunately in Newcastle, Sheffield, Oxford. These are the for the front of types of Ataxia. Each name pops up with neurology medical magazines conferences. The one I see is my life changer from just going to hospitals not knowing much of the condition with it so complex. I was fortunate for 6 years I was not happy with the decline of the condition and by chance, a professor heard of the condition and how it had affected my brain he took me on to be tested and was happy for research which the professor assured he will take care of the list of complexes I had. Scotland I have not heard of an official Ataxia specialist and according to the ataxia, the specialist journal has nothing. This is not been disrespectful but you will find around the country some NHS have never heard of the condition and it is alarming. I was at a conference last year giving a talk on this subject stating not enough medical schools, the university is fully covering this area with a survey of only 15% of NHS only heard of the condition. Scotland mp should be made aware of this and one piece of advice on the web go onto ATAXIA UK this gives up to date information and will send a free pack out to find the best Ataxia specialist. Take care and hope all works well for you.

Reply

Thanks very much. Who do you see in England?

Reply

I have to travel to Sheffield reason for this he has pioneered a few breaks through the well-liked worldwide. Professor M. HADJIVASSILIOU if you would like to see his abilities go on to YOUTUBE he has a list of types of ataxia issue so you understand which issue you have and it explains the understandability of the issue. Don't get me wrong Newcastle upon Tyne his exceptional with excellent knowledge, Also Oxford same again the three are in my opinion are excellent at the pioneering advance Professors. We may have more in the London area but I am going by the merits, Hope this helps DizzyDays take care.

Reply

Thank you

Reply

You may also like...