New here!!: Has anyone done a gluten free eating... - Ataxia UK

Ataxia UK

4,090 members4,664 posts

New here!!

impulse4 profile image
9 Replies

Has anyone done a gluten free eating plan, and what are the results? I am asking because I read that is has a significant role in helping to slow the regression, and I am going to start myself.

Thanks

Written by
impulse4 profile image
impulse4
To view profiles and participate in discussions please or .
9 Replies
Marz profile image
Marz

ncbi.nlm.nih.gov/pubmed/201...

You may be interested in the above piece - which appeared on the Thyroid UK forum here on HU today. I have been gluten free for many years in order to heal my gut to reduce Thyroid anti-bodies. Dr Datis Kharrazian wrote the book - Why Isn't My Brain Working - which may also be of interest. He discusses gluten molecules penetrating the blood brain barrier and causing inflammation. He has a website too.

I have read about Gluten Ataxia - B12 Ataxia and Hashimotos Ataxia so I am treating all three :-) I think B12 injections have been the best !

ninotchka profile image
ninotchka

Hi,

I just started a gluten-free plan, along with limited dairy and eggs, as these foods are considered inflammatory. Anthony William, the "Medical Medium" is a firm believer in eliminating inflammatory foods, along with soy and corn, due to their high probability of being genetically modified. I live in California, USA, and you know how we Californians like to pursue these ideas!

CarerNeil profile image
CarerNeil

It's interesting to me that in the replies I've read so far, the main dietary motivation seems to be 'anti-inflammatory'. I say this because we've recently spoken with our Consultant re. the anti-inflammatory benefits of CBD oil, and his response was 'go ahead if you want to, BUT inflammation does not appear to play a part in CA - it's a neurological condition, therefore, you cannot expect it to change anything'.

I'm not suggesting that you go one way or the other, but I will suggest that you discuss it with your medical advisor.

Now having said that, I'm about to contradict myself. :) MS is similar to CA in many ways, and I had occasion to meet a lady who had completely recovered from MS through dietary means. This was her bible ... amazon.co.uk/Overcoming-Mul...

I wish you the very best of luck & implore you to update us all on how it goes.

Happyfacexx profile image
Happyfacexx in reply toCarerNeil

Thank you carerneil I go to a ms group and my ataxia symptoms are exactly the same as ms. So am very pleased to get the details from you about overcoming ms . I look forward to getting the book 😀

CarerNeil profile image
CarerNeil in reply toHappyfacexx

I wish you all of the very best with it. There's an accompanying recipe book she recommended, but I can't remember which one it was. There appear to be a few on Amazon.

Happyfacexx profile image
Happyfacexx in reply toCarerNeil

Yes , thanks, I’ve just had a look on the oms website and they have a few recipes on it and advertise a book there 😊

Happyfacexx profile image
Happyfacexx

Hi, I think there’s a few of us in this group following Anthony Williams diet which is a vegan gluten free diet ( with lots of other dos and don’t s). I definitely feel better following it. Don’t think I’ll ever go back to eating gluten

ninotchka profile image
ninotchka in reply toHappyfacexx

No, it is not vegan. Anthony William does not speak ill of meat, fowl, or fish. Of course, beef should be grass-fed. He doesn't approve of pork because he believes it to be too fatty.

Litty profile image
Litty

Welcome

We are all so different - you need to try it yourself to see if it helps you. Because my daughter is celiac we have very little gluten, but I have not found gluten affects my ataxia x

Not what you're looking for?

You may also like...

New here

Hi all. Has anyone else been diagnosed with sensory ganglionopothy ? I have gluten ataxia and...
GlennB profile image

I'm new here...

My name is Trisha. I am 46. I was diagnosed in 2014 with spino cerebellar ataxia (inherited).
tleure profile image

I'm new here

Hello, my name is Molleke2 and I live in Holland. I have SCA-type 3. I joint this community to...
Molleke2 profile image

Hi - am new here

Hi, my name is Steve and recently diagnosed with cerebellar ataxia. I live alone and looking to...

Controversy here

I am glad that someone has weighed in again on the Trehalose issue. Well either its great or its...
neta profile image

Moderation team

See all
HarryB profile image
HarryBAdministrator
VE93 profile image
VE93Administrator
WendyBom profile image
WendyBomModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.