Low blood pressure?: Hi I've been experiencing... - Ataxia UK

Ataxia UK

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Low blood pressure?

SamGH profile image
7 Replies

Hi I've been experiencing more and more when I get up, stand up from sitting, extreme dizziness and lightheadedness which often leads to me falling down could be because I have got very low blood pressure or could be ataxia or a mix both. Just don't know

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SamGH profile image
SamGH
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7 Replies
Mariweena profile image
Mariweena

Hey Sam! I had the same problem before I was actually diagnosed with Aquired CA. I know I’ve had ataxia (I didn’t know what ataxia was but in retrospect, yep) since a case of bacterial meningitis almost killed me 8 years ago. It took 8 years to diagnose me...anyhow, I was at an appointment with my pcp and my BP was 84/50. I made the appt because I’d noticed that when I stood up I would feel like I was going to pass out. His recommendation was to drink more coffee and eat more salt! It worked! And I do love coffee and salt :-). I would not recommend this unless you are otherwise healthy except for the ataxia. It brought mine up to 107/60 and I no longer suffer from the issue.

I think it’s called orthostatic hypotension...or something like that.

Hope this is helpful!

Hang in there 😊. Marina

SamGH profile image
SamGH in reply to Mariweena

Thanks for this could be useful I will ask the quacks

geneticallygeneric profile image
geneticallygeneric in reply to SamGH

See your GP before doing or trying anything

neta profile image
neta

What u r describing are also the classic symptoms of a n ataxia-related syndrome called MSA or Multiple Systems Atrophy...Ask your neurologist .. xx N

hsilverman1 profile image
hsilverman1

It could also be Vertigo. You need to check with a neurologist.

Always,

HS

Litty profile image
Litty

I would get it checked but my Dad has this problem x

peterallison profile image
peterallison

my blood pressure, as measured the other day, is the opposite, it high. I still get a bit light headed when standing up, and have to wait a few seconds, getting my balance, as I will fall over as I have done before, so now I hold onto something, like the window sill, and then I will go to say the kitchen

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