Botox for excessive salivation

[Angelcake1]

Hi has anyone been offered and/or had these injections?

If so could you share your experience please, thinking of approaching neurologist to ask if they are a possibility.

[suzie44na]

Hi Angelcake1, I had Botox for seven years in my neck for dystonia. It did work a little but I had to go back every three months as it wears off. I gave it up in the end because the last time I had it I felt like I had the flu, maybe because he had put it all in the one area, when normally he spread it around my neck. It works but you need someone who is good at injecting it too, I was told in London that it was not done right. They offered to do it for me but it was too far to travel all the time. It is worth a try, if it does not help, then just give it up. Hope it works out for you.

All the best

Suzie

[Angelcake1]

Thanks for your reply suzzie, I think it will be Sheffield Hallamshire if the Neurologist agrees it's worth trying. It was the physiotherapist that mentioned it, she did say it depends on how expert the giver of it is.

Which area did you have yours done ? X

[HollyBee51]

I had two treatments specifically for excessive salivation and they worked very well but I didn’t continue getting them every 3 months per the protocol. I have some qualms about the pat answer I got when I asked about side effects and was told that the serum didn’t get into other parts of your body except where it’s injectedi. Like Suzie44na,initially I started getting Botox in my neck for the head drop. It didn’t work but within 3days I felt odd my legs got weak and wobbly and I fell for the very first time. I decided not to take any more treatments

[Angelcake1]

Thanks HollyBee, I can see there is a lot to consider and I appreciate your input it will help x

[Jenandbeth]

Hi, through work I have known a number of children who tried BOTOX injections, it tended to be a bit of a hit or a miss. Worth trying in hope of hit, but maybe with 'feet on ground' knowledge it might be a miss so not too disappointed if it is. I've also known kids who had botox in their legs and same could be true, but I did see some lovely results. These kids didn't, to my knowledge, have official ataxia diagnosis, often they were undiagnosed or had CP diagnosis.

[Angelcake1]

Hi

Thank you jenandbeth, very good way of looking at it, if it works its a bonus and hopefully stopping aspiration which causes the pneumonia.

[winch]

Hi Angelcake1

My Neurologist recommended Botox injections to help with my head tremor. I was given these by a very experienced Doctor but unfortunately I experienced severe pain afterwards. I thought it might be a 'one off' so after three months had another injection but experienced the same reaction. The Doctor said he had not had a patient react like this in the many years he had been giving the injections.

Winch

[Angelcake1 in reply to winch]

Thanks for your reply winch, sorry to hear about the pain you had, did the Botox work for the tremor tho ?

[winch]

A slight difference but nothing that was noticeable to the family.

[LuisRodicioRodicio]

Hi Angelcake1!

I know your question is old and probably already solved the problem.

Anyway, I attach our experiences and I would like to know how you have overcome the problem in your case.

Thank you.

Luis

•Excess salivation - drooling:

In our case and at the moment (2018-10) it is working:

•Drink plenty of liquid. In this case we use juice of “mango” and the juice of 1/4 lemon for each 250 c.c. of mango juice, adding thickener until it reaches an adequate viscosity so as not to have choking problems.

•After hydrating with the mango fruit and lemon juice, the patient nibbles the remains of lemon pulp. The pure lemon is astringent and makes it easy to control excess salivation.

•Some caregivers have mentioned that the physician has prescribed Botox for drooling problems. In addition, the doctor who does the injections also prescribes pill, glycopyrrolate, that seems to extends and enhances the effect.