Ataxia UK
2,513 members2,323 posts

BPPV

Hi got bppv in November eply done it went. Late feb bent over back. Gp couldnt do the Eply i was crying she wasnt confident. Im on Serc 16 twice day Stem and it had got loads better though still dont turn on left side. Had ears syringed almost 3 weeks ago since then ringing 24/7 and last Tuesday constant 24 hrs nausea started. Ive got a referal to the hospital physio who did it in November got a chiro appt got gp appt 28th . Last night took Gaviscon as ive a reflux attack too a bad one. This morning woke sickness level 3? Its a nightmare 😥😥😥😥😥

10 Replies
oldestnewest

I’m diagnosed with BPPV too, and try to avoid lying on my right side. I had several sessions with a Neurophysiotherapist who applied the Eply Manoeuvre. My GP wasn’t confident in doing it either. For me, the Manoeuvre confirmed which ear was worst affected but didn’t completely alleviate the problem. I empathise with you, the sensation brought on by the Manoeuvre can be sickening to say the least. Years ago, an Ear Nose and Throat Specialist abandoned the procedure because it reduced me to tears. He said I didn’t have BPPV, I was just hysterical 🤦‍♀️ I get acid reflux too but not sickness. Currently, I always lie with my head raised on 3 pillows, and my Neurologist has prescribed Acetazolamide, to see if it helps with BPPV 🙂xB

Reply

Hi wobbly,similar carry on with my local doctor,Vertigo attacks,couldnt see,did not know if the floor was above or below me,sickness,panic attack,couldnt breathe,shaking like a leaf,heart trying to burst through my chest,.....and doc says "I am going to make you Very Dizzy,and sick,bring somebody with you because when I am finished with you somebody will have to take you home,you won't be able to walk unaided for some time,there is no guarantee this will work,and may have to be repeated a few times.......Oh Joy!

Reply

Oh boy nooo ive not been that bad. I do know the Manouvered positions are bad to do. I had an appt in the City private one but was warned like you . I cancelled it. I dont drive. Husband cant take day off. Also cowardy custard but for me its the nausea which suddenly came on 7 days ago. If i wasnt 66 id say i was pregnant 😂

Reply

Boy we sound the same except for the chrin8c sickness. I think Doctors dont like do Eply as its so traumatic. Acid reflux attacks bad id have this all the time if the nausea would stop. My whoozy is managable but not the sickness . Im just waiting now thanks for replying 😀

Reply

Hi Suzy, Have you seen the new Hat that has gone on sale in America ? It is a Baseball hat with clear tubing attached and a little pea or something inside , you lie down on your back and move your head in the direction that makes the pea travel along the tube until it has reached the end of the spaghetti shaped course of tubing ,whoever is wearing the hat has now moved all the little particles of calcium or whatever back to where they came from in the vestibular system,and cures your dizzy spells, ...not a fly by night con trick,recommended by American health specialists,meant to be a helluva lot less traumatic than Epley or similar..you can buy from specialist suppliers in UK online ,for about 40...50 pounds..I have researched it and am buying one so I will let you and the forum know how I get on .......(only the Americans could have dreamed this one up) regards jeff

Reply

Boy thanks for that sounds odd but yhen whod think ,aking you feel dizzy with eply can make you feel better. Thanks for offering to let me know 😘 at this point any b.... thing cheers Suzanne

Reply

Ive got relux too? Ive an extremely bad attack at the moment food acid all regurgitating . Thing is its never made me nauseas before ive had it 20yrs only use Gaviscon. Im sorry you like me were reduced to tears mine is 99.9 bppv eyes roll only spin when attack comes other than that just lightheaded unsteady walking a bit like a drunk 😁😁😁😁

Reply

Gosh didn't know how many people get this problem I was just the same nausea dizzy sick and panic attack I felt so ill and norhing was making it better. The tablets I'm now on thank God are working just felt like my life was on hold. My attack came whilst I was at work and at pilates I was in a terible state I had to get my husband to come and get me as I of course couldn't drive it is a weird one!

Reply

Im glad your feeling better great news. I have bad days and dreadful days. I could put up with dizzy its the nausea open my eys and bam its there. Today up asap at 6am took serc and stemital by 8am lightheaded and bit queasy but nothing like yesterday's. By late afternoon i seem to be 90% and im so happy except i know i go to bed go to sleep and wake up to nausea again. Seeing a Chiropractor tomorrow see if he can help. If the tablets are working yipeee i had this in November with in moments of getting to Casuality i saw a physio who repositioned the crystals. What they dont tell you is its up to 70% it will return with in 6mnths mine returned in 3mnths but no Eply this time as Gp no go. Hopefully tomorrow's appt will stop the nausea thats all i want now cheers 😀😀😀😀😀

Reply

Oh I do feel for you it is awful having this good luck x

Reply

You may also like...