Ataxia UK
2,625 members2,435 posts


Hi, I just wanted to say that the best resource available for parents of kids with FA is the Friedreichs Ataxia Parents Group.

We are an international email group and there are some very experienced parents who kindly offer guidance and advice on supplements, equipment, medical matters and emotional support. This is your best shot at becoming the expert in this condition that you need to be.

You're not on your own. Come and join us.

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Ataxia UK also has a closed Facebook page for parents of children with ataxia. To join this contact Steph Marley at

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