Ataxia UK
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Your help needed: Neurological Alliance patient experience survey

Hi All

The Neurological Alliance has launched a patient experience survey to collect information about the experiences of care received by people affected by neurological conditions; the survey is the first of its kind for the neurological community. The findings will be crucial in helping them to understand what progress is being made in improving neurological services, and what still needs to happen.

The survey is open to anyone with a neurological condition living in England and will close on Monday 15 September 2014.

The findings will be used to feed into the NA's first annual variations report later on in the year. Setting out a comprehensive picture of what is happening in relation to neurological services nationally, the report will be a vital tool used by everyone in the neurological community, in order to raise awareness of neurological conditions among target stakeholders. The findings will also provide a baseline from which to measure progress in improving services in future years.

We are really keen that the experiences of people with ataxia are well represented in the survey - so far 32 people have done it. Please can you add your experience by going to


Sue Millman

CEO Ataxia UK

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