Unlike many of you here I am not a sufferer of any Ataxia, nor am I a family member or close friend of a sufferer. Perhaps it's wrong for me to be a part of this community due to no real connection with ataxia, maybe some of you will be offended at the fact that I signed up to this community - so let me explain.
I am an 18 year old student making my progression into University where I hope to study biochemistry and neuroscience. My main focus and drive is to find cures to Ataxias of all forms, therefore it is vital to me to continuously learn about the Ataxia community and how this disease affects sufferers and those close who may be involved.
Already I am in awe at how strong this community is, and I find it extremely inspiring and motivating that you can all join together with this disease. It gives me greater hope that we can find a cure some day, or at least more affective treatments in the meantime.
Initially I was inspired to become a physiotherapist, as I understand that this treatment can work wonders in slowing the progression of ataxia. However, I want to be more involved with the development of future treatments, sadly with physiotherapy there is a point where it can no longer limit the disease progression - and other treatments are needed.
I hope that I can continue to learn about the varying ways ataxia affects sufferers and how we can improve medicine in response to this!
Thank you very much for reading this and I am truly sorry if any of you find it offensive.
I think it is wonderful that you want to pursue a career in researching the ataxias and reading the experiences of people with ataxia will, in my opinion, help you enormously. There is nothing more motivating than being inspired by an individual's or group's experience.
Can I ask how and why you became interested in the ataxias? A lot of 18 year olds, unless they have a personal connection to the condition, have never heard of it. Also, where do you hope to go to University?
I certainly hadn't heard of ataxia when I was 18. It can't have been invented then.
I f you're curious, I'm 48, otherwise I'm 21!
I first learnt about the disease through a Japanese Drama called 1 Litre of Tears, which is based off some diaries written by a girl named Aya Kitou, who battled with the disease - spinocerebellular ataxia for 10 years.
I found her story incredibly moving and inspiring and it led me to do much more research into the various types of Ataxia.
I hope to go to Keele university to study Biochemistry and Neuroscience in order to become a researcher Thank you all for your support!