wilderness

[modern1]

i was diagnosed in 2005 with laco but on reading the symptoms of spinocerabella i have a lot of them,i have been lost in the nhs system for 3yrs now,i know i should someone about it but i feel its a waste of time,so i guess i shall just muddle on

[Wyndham]

Hi wilderness,

Sad to read about your problems with the nhs - I think many of us have similar stories.

I would suggest you contact Ataxia UK on the Helpline. I found them friendly and helpful. ataxia.org.uk/

Very best wishes in getting the help you need.

[cclive35]

we habe one of the best systems in the world but unfortunately doctors know very little about ataxia even in 2013

[modern1]

hi,clive thats why i think its a waste of time,but why are these neuro lot trying to learn about it

[cclive35]

hopefully to help us in some way. i was diagnosed over 20 years ago so in my case and many others i cant see it but hopefully the gradual increase in awareness will help

[scruffycat]

I know exactly how you feel moern1. I had a crash over 20 years ago. Bounced around the NHS system for a while, nobody really having control of the outcome. Then they just decide they can do no more, and you're on your own.No diagnoses, no profassionnals to give advice, just the ever presant moaning that they need more money.

Which side of bed did I get out bed thiis morning?!!!!!!!!!

[scruffycat in reply to scruffycat]

it's still happening. Once the ball is rolling, nobody will even try to stop it!!

[modern1]

thanks all you guys