Are there many out like me. I been told i have spino cellebellar Ataxia but despite 3 stays in hospital over the years the doctors still don’t really know what i really have or the cause.
Whatever i do really have i have had for 35 years. Over the years i have gradually got worse. I am in my 60s now. My main problems are my balance and my walking. My walking has got worse the last few years and now it is a sort of shuffling stagger. Rather like i have had 3 or 4 pints and i often find it embarrassing when walking in public.
My questions are other people embarrassed over how they walk. And who is the best person to talk to about my walking balance problems. To be honest i do not have a lot of faith in doctors whose attitude seems to be carry on and if you get really bad or start having major problems come and see me. Otherwise don’t bother me.