Help with getting help please - Pernicious Anaemi...

Pernicious Anaemia Society

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Help with getting help please

Friedeggsontoast profile image

I had bloods done recently as I'm experiencing extreme fatigue, shortness of breath, difficulty concentrating, generally bring uncoordinated and discombobulated. This test came back abnormal, I self inject B12 not from prescription because when I moved Dr surgery they refused to prescribe it like my old one did. My B12 level was high 4000 but I don't know what to do next. Any advice please how I speak to my GP about it, I've requested a phone call. TIA

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Friedeggsontoast profile image
Friedeggsontoast
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4 Replies
Nackapan profile image
Nackapan

I would explain the predicament you were left in with ref to B12Quote PAS ect

Ask them to explain current results.

I had an iron result out of range I didn't understand

G.p not concerned .??

Are you on supplements?

Iron has to be looked at with all results.

A medical eye is needed so make them listen to your concerns.

jade_s profile image
jade_s

One lab on its own is difficult to interpret unfortunately. If you have others please feel free to post, though none of us are really iron experts, except maybe FlipperTD.

Did they test thyroid function?

Folate? Low folate will hinder b12 from doing its job.

Nackapan makes very good points.

Sleepybunny profile image
Sleepybunny

Hi,

Welcome to the forum.

Have you got recent folate results?

Link about Full Blood Count (FBC)

labtestsonline.org.uk/tests...

Links to forum threads where I left detailed replies with lots of B12 deficiency info eg causes and symptoms, UK B12 documents, B12 books, B12 websites and B12 articles and a few hints on dealing with unhelpful GPs.

Some links may have details that could be upsetting.

Some of the info will be specific to UK.

healthunlocked.com/pasoc/po...

healthunlocked.com/pasoc/po...

healthunlocked.com/pasoc/po...

Link to thread about Patient Safety, has useful links for those in UK having difficult health experiences.

healthunlocked.com/pasoc/po...

I'm not medically trained.

B12life profile image
B12life

what was you b12 level before any injections?

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