My Personal Story

[clivealive]

My thanks to the Pernicious Society Trustees for including "My personal story" in the Summer 2023 edition of "Cobalamin News"

I'm pleased to say that after over fifty-one years with P.A. I'm still "Clivealive" at the age of 82

healthunlocked.com/redirect...

[Jillymo]

What an achievment ! May I be the first to have your autograph now that your famous ? Joking aside that must have been some artical to publish after 50 odd years of diagnosis............

But your still our Clivealive i'm pleased to say.

I hope all is well with you and yours.

[jade_s]

That is really great clivealive! 😊 You have amazing stories to tell and it's been a privelege to read them on the forum.

I too would like an autograph haha 😅

Best wishes xx

Everyone can read clivealive's story here pernicious-anaemia-society....

[Jillymo in reply to jade_s]

Clive is an insperation to us all.

What a story he has to tell. 😘

[MrsTuft in reply to jade_s]

Please, what page is it on- I can’t find it?? Thank you!

[Gambit62 Administrator in reply to MrsTuft]

link is pernicious-anaemia-society....

[MrsTuft in reply to Gambit62]

thank you I found it!

[deniseinmilden]

Goodness, where does time go?It only seems a moment since you were

"clivealive at seventy-five"!!

So good you're still going strong and well done for your story being published - excellent!

All the best for the future going forward.

[clivealive Forum Support in reply to deniseinmilden]

Thanks deniseinmilden I was so chuffed at that rhyme 😅

Take care and God bless

[deniseinmilden in reply to clivealive]

Great wasn't it!Never mind: another moment and 85 will fit the bill! 😁

God bless you too.

[Gambit62 Administrator]

it was good to see your story in the newsletter Clive

[clivealive Forum Support in reply to Gambit62]

Thanks Gambit62 - I think the injections are still working but I still gib at the thought that it was suggested by my doctor that I would have to eat raw liver three times a day back in 1972 when I was first diagnosed. 😅

[MrsTuft]

Your article mentions Stoke Mandeville - I am in Wendover - next village!!

[clivealive Forum Support in reply to MrsTuft]

As I stand in my back garden facing West in Aylesbury I am on the same level as the roofs of SMH

[MrsTuft in reply to clivealive]

Ah I am from Aylesbury, and even worked at SMH. I will smile to think of someone living successfully with PA close to me.

[clivealive Forum Support in reply to MrsTuft]

I go there once a year for my diabetic retinography eye test - sad to think that the damage to my left eye may have been caused by the P.A. and they were never checked down the years. "Look into my eyes! 😃

[Marlboro123 in reply to MrsTuft]

Lovely chocolate shop in Wendover. Went past it twice today on route to SMH to pick my wife up.

[MrsTuft in reply to Marlboro123]

Yes it is lovely. Expensive but lovely. 😋

[clivealive Forum Support in reply to MrsTuft]

When I was an electrician in the early 1960s I wired about a dozen "old people's bungalows" off the left hand side going down the lower end of the high street. I wonder if they are still there?

[MrsTuft in reply to clivealive]

Near the clock tower?

[clivealive Forum Support in reply to MrsTuft]

I think it is now known as the Vineries,

It's 60 years ago now but seem to remember that the bungalows were "behind the shops on the left hand side of the main road going down toward the clock tower.

I also remember (more vividly) that I was on my own over there for months but that didn't matter too much as "first fix" wiring bungalows when you are six feet four is quite easy and they were quite tiny buildings. I was working for Lightfoot Brothers, Castle Street, Aylesbury back then.

[MrsTuft in reply to clivealive]

An that’s Vinetrees Wendover. It’s a road of bungalows behind the top of the high street. They’re tiny but worth a fortune because of the location. I walk past there most days on my daily walk.

[clivealive Forum Support in reply to MrsTuft]

Well, if there is no other cluster of bungalows "behind the shops" they must be the ones I worked on back in c1961.

I was lodging in Whiteleaf at the time and would sometimes cycle in over the"switch backs" down the hill and over the railway line so perhaps I thought the site was "further down" than it was.

I also worked in the ESN school along the Hale and was amazed at a drawing of a human heart on a classroom blackboard. I never got taught that sort of thing in my Brummy Secondary Modern school

[MrsTuft in reply to clivealive]

Yup - It’s definitely it!

Wow that’s a big bike ride.

My mother is from Northfield Birmingham!

[clivealive Forum Support in reply to MrsTuft]

Northfield's about 11 miles south west of Stechford (where I was "brung" up) and virtually on the bottom edge of the city. Your mother could probably have seen green fields - the only green I saw was what came up between the pavement slabs or what paint there was left on the front door. I "ran away" from Brum when I was 17 - immediately after the stomach surgery.

[MrsTuft in reply to clivealive]

Ah my mum fled to London aged 19 and quickly lost her brummie accent as it was derided and misunderstood inthe 60’s. There was lots of green - my grandmothers house backed onto a golf course.

[clivealive Forum Support in reply to MrsTuft]

I ran away in the opposite direction from your Mum, down to Clevedon in "Zummerzet" in 1959 where they "torked" so slowly that I had to use one word sentences to be understood and took a packed lunch for any long conversations.

[MrsTuft in reply to clivealive]

🤣

[Nackapan in reply to clivealive]

Made of sterner stuff in your generation. My mum and dad cycled from London to Essex to house hunt.

64 Mile round journey and the walkabout once there !

Cycling gear wax 2 metal trousers clips .

Still have them. !

Mum 93 .

Has had b12 also for decades

[JanCymru]

It was so lovely to see a photo of our 'clive alive' and to put a face to the name! Thank you for all your input over the years - very much appreciated by all! Wishing you many more 'clive alive' years.

[Litatamon]

Hi Clive,

Thank you for showing us. And thank you for being such a great support. I talk to my sister on about a quarterly basis about you, trying to get her to increase her injection schedule. Using you as as a strong example that no awful circumstance.is going to suddenly happen, as we are on cyanocobalamin here.

I wish you all the best.

[Ghound]

Congratulations Clive ! Best wishes xx

[clivealive Forum Support in reply to Ghound]

Thank you for your kind wishes Ghound

[Cobalt1312]

Three cheers for clivealive !!🎊😊

[Nackapan]

That's great 👍 For sone reason I wasnt sent that news letter

I cant read it on here 😭

I'm a member of PA S

Not sure how to remedy it????