Vitamin B12 deficiency after a decompression surgery

[Brownsugar3]

One year after my sugery i ended up with PA. So recently began my vitamin B12 injections. Now on my fourth weekly shots. At the begining i didn't seem to experience any change but instead i was more constantly nervous with brain fog. I can now begin to experience less of the symptoms slowly.

I guess my shots will be life time but i am happy it's helping.

[wedgewood]

Yes, at the beginning of treatment you can often feel somewhat worse before you get better . I guess that you are in the U.S.A. , as you have weekly shots to start with . Here in the U.K. , we get a “loading dose “ of 6 injections over 2 weeks , then an injection every. 2 or 3 months .Yes, your injections will be for life . I expect that your doctor has told you to make sure you have plenty of folate in your diet , or take a supplement of a folic acid tablet . Folate and folic acid are both vitamin B9 , which works together with B12 .

Best wishes .

[Brownsugar3 in reply to wedgewood]

Thanks for your reply and great Information. I reside in Switzerland.

Best of lack as well

[wedgewood in reply to Brownsugar3]

Just out of curiosity Brownsugar3 , are B12 ampoules obtainable “ over the counter” in Switzerland ?O.T.C. In the U.K. , they are prescription only . This causes problems for patients with P.A. who find that even a 2 monthly injection fails to keep P.A. symptoms at bay . We are forced then to self inject ,as our doctors will not allow us any extra injections . We can obtain our ampoules from certain online German pharmacies . As you know , P.A. patients have to have B12 injections for life .

[Brownsugar3 in reply to wedgewood]

Unfortunately it's only by prescription here in Switzerland Wedgewood. Incase in the future it will be complicated to keep up with the symptoms and prescribed injection. I will have no option but to look for other ulternatives like aelf injections.

[wedgewood in reply to Brownsugar3]

The following German online pharmacies will supply you with Rotexmedica B12 depot ampoules ( which is Hydroxocobamalin) if you ever need to self-inject .

bodfeld-apotheke.de

versandapo.de

mycare.de

You may not need them of course 🤞.

[Sleepybunny]

Hi,

Some links about PA and B12 deficiency that might be of interest.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

PAS tel no [phone] answerphone

B12 Deficiency Info website

b12deficiency.info/

B12 Awareness (US website)

b12awareness.org/

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

B12 books I found useful

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

[deniseinmilden]

I'm pleased it's helping.

I'm really grateful to you for posting your experience as I believe that the UK's protocol if 6 injections in 3 weeks is flawed and that weekly injections are more gentle on your system so produce better outcomes long term, even though it takes a big longer to get initial signs of improvement.

It would be interesting to hear how you are long term.

Best wishes to you!

[Brownsugar3 in reply to deniseinmilden]

Thanks for concern i will keep posted on the long term changes.