DRPLA

[majajefferies]

We are looking for anyone with or who knows of someone with a DRPLA diagnosis (a rare form of SCA).

We are in negotiations with two research centres about testing a drug for DRPLA but need as large a patient base as possible in order to appeal financially to pharmaceutical companies we hoping will work with us.

Please, if you suffer with or know of anyone who suffers with DRPLA join RareConnect DRPLA community on:

rareconnect.org/en/communit...

As a new member you can choose to introduce yourself or not write anything at all, but please do join!

Every patient here counts!

If you have any other questions please don’t hesitate to ask!

Many thanks for reading,

Maja

[tedjohnson]

Hi. Majajefferies

Can you tell us all what DRPLA stands for

Cheers. Ted

[majajefferies in reply to tedjohnson]

Sure:

Dentatorubral–pallidoluysian atrophy

It is a rare type of SCA (spino cerebellar ataxia).