Ataxia is so unpredictable : I have not been to... - Ataxia UK

Ataxia UK

4,110 members4,689 posts

Ataxia is so unpredictable

KiwiBob profile image
6 Replies

I have not been to bad this week. I have had a few ups and downs but got by.

I went into town today and my Ataxia slowly hit me. It took me ages to get back to my car and now I am spending the day on the couch watching tv.

I hate having Ataxia.

Written by
KiwiBob profile image
KiwiBob
To view profiles and participate in discussions please or .
6 Replies
springlove profile image
springlove

I HAVEN'T BEEN ANYWHERE TODAY. JUST SPENT HALF HOUR IN BED AS CAN'T PROPERLY STEER MYSELF AND MY NEW GLASSES AREN'T ANY HELP

KiwiBob profile image
KiwiBob in reply tospringlove

I am up and about but only in the house. Not going anywhere. Has taking all that resting to allow me move about the house.

Very tied, need my bed. Falling asleep while trying to watch the rugby.

springlove profile image
springlove in reply toKiwiBob

I know the feeling only too well Bob, but we keep trying x

Jeannie

Cuds profile image
Cuds

It gets you like that somedays Bob. Try and turn negatives into positives......legitimate duvet days....now you're talking! 😉

Ginger12 profile image
Ginger12

Driving - what's that? I gave up about 2 years ago.

Yes ataxia is a swine but we do what we can when we can - without doing too much - as it affects following day!

I find i try & sleep for as long as i can at night (10/11 hours) & that helps during the next day. I try not to sleep during daytime as this disrupts my nightime.

Ataxia sucks. Resting watching TV should help though. Try not to let it get you down.

Keep smiling x

february profile image
february

Dear KiwiBob, I have a system that seems to work for me. If I over-do one day

(go anywhere/ do anything), I totally rest the next. I think everyone feels the way you do about having ataxia, as I know I do...,ha! Just do the best you can! Take care...,;o)

Not what you're looking for?

You may also like...

unknown ataxia

I am unknown ataxia at the moment. It seems hard to be this. I do not really know how I can connect...

Ataxia / menopause

Is there any chance that menopause could efffect ataxia I'm going there the menopause but it seems...
Tazwaz profile image

Hereditary ataxia?

Could anyone give me any advice or information about hereditary ataxia? I'm 18 an just been told I...
B-cow3 profile image

ataxia

I have the same ataxia as yourself and therefore suffer the same symtoms as you do, I am now 61...
LBenyon profile image

Ataxia

Hi my name is Susan I have ataxia I had a bad fall in 2010 months after I knew something wasn't...
Susanwilding profile image

Moderation team

See all
HarryB profile image
HarryBAdministrator
VE93 profile image
VE93Administrator
WendyBom profile image
WendyBomModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.