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Ataxia UK
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The cerebellar cognitive affective/Schmamann syndrome

I posted about this over a year ago and I apologise for telling you again - but I think it helps explain a lot about our behaviour xx

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Very interesting its amazing how this frustrating condition can effect us 😏

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Good for others to know though - so they understand x

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Thank you, very interesting Litty.

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Thank-you for sharing this was very interesting & explained a lot.

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Thanks for posting this, very interesting.

My ataxia became obvious about 5 years ago, still no definite diagnosis latest possibility is CANVAS - cerebellar ataxia, neuropathy and vestibular areflexia syndrome - basically ataxia with neuropathy and vestibular problems aswell. Neuropathy and fatigue are my biggest issues but I have noticed increasing difficulty with planning, organising, etc. I am also incredibly emotional - will cry at the drop of a hat - don't think I am depressed, have my moments like we all do but I feel that I cope fairly well, family are wonderful and keep me busy - have two young kids. If I hear or see anything sad, film, sad story on radio, etc. I get very upset - it's a bit of a family joke at this stage. An aunt of mine died on Friday night - she was 95 and had had very healthy life up until about 93. I'm dreading her funeral as it's embarrassing how upset I get. Oh well! Does anyone else have trouble controlling crying?

Liz

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Yes ,I sympathise with you,I get those emotional feelings too,is it because we have a sensitive nature rather than the Ataxia causing us to be like that

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I cry a lot xx

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The emotional thing is happening to me now. It has for a while. I could not figure out why until I read your post.

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Thank you for the information,it's so good,explains a iot.Do they know about that in the U.K.?

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You don't have to apologize, many will find out what there suffers are and your post will help them feel less alone. No matter the date of the post, someone's health will always be brand new to them because they are now sure of it.

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Thank you Litty. Very interesting.

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Thank you all for lovely replies x

Lol - I have idea that I am doing but it is good for all our families and carers to know x

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Dear Litty,

The video explained cerebellar ataxia very well...,thank you for posting it again, as I hadn't seen it before! In answer to Wozzer45, yes, I cry at the drop of a hat too! ;o)

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Lol I cry all the time too and make funny noises - so I am a nightmare to take to cinema - I LOVE mixed popcorn too but it goes everywhere x

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Oh apparently too you can hear me sleeping too x

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This is wonderful! Thanks for sharing. I have suspected for some time, that some of my problems with retrieval of words, are related to my Cerebellar Ataxia ailment. So, this goes along with what I've been thinking, even though not all of my health professional team agreed with me. Of course, it's not wonderful living, and dealing with Cerebellar Ataxia, I realize that it helps me, when I have a better understanding, of what my symptoms mean.

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What revelation! My father had behavior difficulties, later attributed to drinking, but it was originating somewhere else...I am no medic, but my bro has been always a bit slow thinker, esp. reasoning, rational thinking when this happens, that will follow...highly sensitive, his spatial part is great (can drive a car), his speech develop. fine, but not speaking much, more quiet...doesn't read much, actually hates it...always presumed as a dyslectic...I speak multiple languages...sharp...but driving? spatially disaster, can get lost on already visited place...Thank you Litty, once I googgle the cognitive syndrome....I understood...All in all, as if men-are affected in certain areas, women different...

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I am so so glad it has helped : ) (and I especially like that it is a short video!). I know I often annoy my other half with some things I say unintentionally and also he adapted some questions, he understands more x

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I knew it! While my intellect is still intact some days I just feel downright stupid πŸ™„

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Nice one, thank you.

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I work in I.T. I am having problems multi tasking and using a computer. I can no longer do my online gaming as I am having hand-eye coordinations problems and the computer screens set my Ataxia off.

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