Does anyone have a child with Friedrich's around 11 years old?

[Wobblybob]

[castle0365]

We have a 5 year old diagnosed this year. Is this new to you or have you known a while?

[Wobblybob in reply to castle0365]

Our 11 year old daughter was eventually diagnosed in February after many "red herrings". Whilst she has made friends of a similar age who have been diagnosed with other conditions she has not met another child with FA.

[grumpygranny]

My 14 year old granddaughter is in denial. Doesn't want contact with other (Friedricks) Ataxians -

wants to be seen as normal. (She was diagnosed on her 13th birthday in 2011)

[Wobblybob]

Our daughter refuses to speak about her FA with children she has know since she was small however has spoken about it in a roundabout way when choosing a charity for her new high school to support.

[nikkistowe Volunteer in reply to Wobblybob]

hey im 26 so bit older but when i was diagnosed i didnt tell any of my lifelong friends. it was confusion on my part and not wanting to be different. i was diagnosed at 13 but hid it till i was 18 when i started using a wheelchair part time - thanks to falling and breaking my ankle. when i was diagnsed anger was a big thing for me and blameing my parents, it sounds horrible but its true i ws angry at those who caused it, frustrated with my own body and envious of my riends doing stuff i cant. hope that helps message me if i can be anyhelp - im working tomorrow so there maybe a delay with replying x

[Wobblybob in reply to nikkistowe]

Thanks for the heads up...it's hard second guessing what she's thinking & what makes her tick particularly when school are reporting that she is behaving in ways that aren't usual for her...I guess it's a mix of frustration & her head being full of "stuff"! The odd bit is that she is happy to be seen in her wheelchair at school & at events like wheelchair basketball but not by her oldest friend!