We are waiting for a formal diagnosis, we have had an MRI which shows that my one year olds cerebellum is smaller than it should be and has deep furrows on each side - its been damaged. We are waiting to find out if her condition is progressive or genetic. She cannot sit unaided, cannot crawl, cannot use both hands at the same time, she has a squint and also nystagmus. She is learning to roll herself over but doesn't
Show much interest in doing so. The physio's refer to her movements as ataxic. There is no family history and this is a total shock to my husband and I. I am struggling with coming to terms with the fact that my daughter is Going to be disabled. She is though a very cute, beautiful, engaging baby. Cognitively so far she seems fine, although I think her speech is going to be affected to. Does anyone have any comments to make/experience?