Has anyone been diagnosed with Hashimotos Encephalopathy?

[wobblybee]

[jerry415]

It’s a rare diagnosis, but one of three that I have gotten

I have seen several neurologists and have gotten three different diagnoses.

1) possible MSA

2) sporadic ataxia or a genetic kind that has not been identified yet

3) Hashimotos encephalopathy, I think based on lab tests for thyroid antibodies and thyroid history and symptom onset of ataxia.

I have received 15 infusions of IVIG, I got a memory boost early on but no improvement in balance or coordination. I continue to progress.

[wobblybee]

Hi Jerry,

My ataxia is 'possibly' genetic but not yet identified. The thing is, I had an MRI

in 2000 which showed abnormalities in arteries at the base of my skull, these

were distorting the medulla, I was experiencing balance problems. An MRI

last year showed atrophy of the cerebellar, the previous MRI is now not

available for comparison, although I have the written results. Currently I'm

persuing investigation into a Thyroid condition because of a range of related

symptoms.

I've had Iritis and have double vision, and have had Nystagmus, although this

doesn't effect me at the moment.

How frustrating to have had 3 different diagnosis, from experts.