When I was diagnosed with Ataxia SCA6 my Doctor of 18 years was very open and Honest with me and told me he understood very little of Ataxia, and " we would be setting out on a fact finding course together" he was very willing to investigate and learn as much as he could about it , as he was also aware of my other on going Medical problems this made any new symptoms a discussion point, we had a good Doctor patient relationship.
However I moved into a sheltered Bungalow just before Christmas 2011, and changed Doctors....... On my first visit to the new Doctor I felt very awkward, even although he had my notes I felt I was under interrogation, He is a lovely Doctor but I came away feeling that he was not willing to explore Ataxia , I was told that he would learn about it as we went along, I found this strange especially when I told him that Ataxia UK would send out special packs to Doctors if they required it . Has any one else felt that their Doctor could be more receptive to gaining a further insight into their condition? Or found that changing Doctors has been as stressful ?
Razzy