I had b12 test March this year 238 and again last week 201. In the meantime I packed in alcohol and went on a diet dropped from 22st 7 to 18 so far. I thought this may improve my results but no. I’ve bought B12 ready to inject and was wondering if I should speak to Doctor first which I know will be difficult as over the phone or just get on with self medication. I get a copy of my full blood tests Monday. I was on every other day till covid n drs stopped. I also been diagnosed with Parkinson’s Disease 2012 and everything gets attributed to that.
Many thanks for reading
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Taff178
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You were already on EOD injections before? If your doctor won't reinstate them, then why not SI. Do you have documented pernicious anemia? If not then it can still be useful to get testing done first.
But regardless they should not have stopped them. It's worth pushing back, if you can manage. Some people SI while in parallel pushing their docs to reinstate injections. It can be useful to have it on your medical record.
I understand the misdirection, doctors did that to me too. All along it was b12d and they blamed everything else.
Hi jade thank you for replying. My old dr put me on eod years ago then new doc came at start of covid and stopped them said tablets otc. No I don’t have documented PA was just severe neurological problems told had PD but many symptoms not on PD list. I’m going to start injecting SI tomorrow myself again for as long as it takes this time and never mention to Dr again
Assuming the test is serum B12 the different on the results is not significant because it is less than 20%, so the difference is within the accuracy of the test and you could get the two results by measuring the same sample twice. That doesn't mean that B12 isn't a problem - just that the tests don't prove anything either one way or the other.
There is a helpline number that PAS members can ring.
Links to forum threads where I left detailed replies with lots of B12 deficiency info eg causes and symptoms, more UK B12 documents, B12 books, B12 websites and B12 articles and a few hints on dealing with unhelpful GPs.
Some links may have details that could be upsetting.
Thank you everyone for replying. I have an appointment late October with Parkinson’s clinic for day trial of apomorphine pump. I will contact them and ask if I can speak to movement disorder/Parkinson’s neurologist beforehand. In the meantime I’m going to go back to SI eod taking a methylated folate eod once loading dose done.
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