Hi All, My name is Madeleine & I have had CA for 45 years. I'm now 73, & very practised in the art of falling over!! I have SCA 6. My brother, my nephew, & our daughter Penny also have SCA6. (Our son however, does not have CA). We are all at different stages with CA. I see my neurologist Dr. Giunti every year, & she is such an incredible encouragement. My brother can't see a neurologist any more as he's been very ill with cancer & is not strong enough. My nephew works full time & his sister also does not have CA but I think he sees someone. Penny lives in Melbourne & cannot afford to see a neurologist. (No NHS in Australia so please don't ever moan about our NHS. IT'S FREE) .
I cannot stress enough the importance of seeing a neurologist if possible, even if it's a long wait. He/she must specialise in ataxia.
Also doing exercises is very important too.