Vitamin B12: Hi everyone Can anyone advise please... - Ataxia UK

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Vitamin B12

simon111 profile image
10 Replies

Hi everyone

Can anyone advise please. My 13 year old son has friedrichs ataxia, his gp just done a blood test which shows vit b12 as 391

Is this normal?

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simon111
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10 Replies
HarryB profile image
HarryBAdministrator

Hi Simon 111

There are many variables to consider when looking and thinking about blood results, for example units used and symptoms experienced by the patient. I would urge you to get in touch with your GP for full interpretation if you are concerned. However if a blood result requires further, immediate attention the GP surgery would contact you and tell you so.

Best wishes

Harriet

GeorginaB2 profile image
GeorginaB2

Hi Simon111

I did make an earlier post about B12 deficiency but it would seem that the current test used can be up to 90% inaccurate because it measures all types of B12 in the blood and not just the ones we need. I'd seen the information in a recent book and was following through on some of the studies it mentions and that was the latest (I think in 2015).

There appears to be lots of problems with B12 diagnosis and treatment.

mikeblount profile image
mikeblount in reply to GeorginaB2

How could B-12 be harmful to take if your blood work says you are B-12 deficient? Heck I get them by taking shots each month. Am I better probably wouldn’t know unless I stopped taking it.

LJH3 profile image
LJH3

I also have FA-I don't know much about the right level of B12 but I would run it by his consultant-don't waste time querying with GP-they are good for many things but not FA it's too rare!! Sorry can't be of more use!

Maysan71 profile image
Maysan71

Get gluten, sugar/carbs and milj out of his diet. Ficus on lots of good fats and protein. Of course lots of veggies.

Read more from Dr Mercola :)

Good luck!!

Maysan71 profile image
Maysan71

B12 is important for creating new cellsand healing. With the right food and supplements your son will ger his balance :))

simon111 profile image
simon111 in reply to Maysan71

Thank you Maysan

I will certainly try that

Who is dr mercola

Mary

Maysan71 profile image
Maysan71 in reply to simon111

He has one of the biggest health sites on internet. Just google what you want.

simon111 profile image
simon111

Thank you Maysan

I did do yesterday I sent a query but I got reply saying they can't help with friedrichs ataxia and couldn’t offer any advice

Maysan71 profile image
Maysan71 in reply to simon111

:)) i have never asked them. I just read theire reports and use the best. If u think of optimising his system instead of info just on fredriechs ataxia. If your son doesnt have good tarmflora he cant get healed.

See a good homeopath. Dr Mercola gives us the best info to get optimized.

I am my best doctor and i try to learn from the best.

:)

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