Ataxia/ chiari malformation : In may of 2014, I... - Ataxia UK

Ataxia UK

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Ataxia/ chiari malformation

9 years ago•4 Replies

In may of 2014, I had a cervical radio-frequency done. Soon after the procedure, I was not able to walk. I had a seizure and I went down hill from there. I was in the hospital for 9 days. I had several MRI'S done. The doctors think it was damage done to my cerebellum. The whole procedure started from me suffering with pain on my whole right side after a car accident back in August 2014. Since the procedure, I am not able to function normally. I have constant headaches, neck and back pain and my balance is completely off. Monday I was seen at the neurologist. Too my surprise she states that on my MRI I have what is called a Chiari Malformation. I have never heard of this in Mt life. It is supposed to be a malformation of the cerebellum. The he neurologist think the procedure I had flared it up. Normally having this problem does not bother you unless some kind of injury occurs. The ataxia has been getting worse. I am hoping someone may have some insight about the two of these diagnoses. Thanks

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Mother25

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4 Replies

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wobblybee9 years ago

Hi😊

I'm so sorry you had this distressing experience.

Members here have various types of Ataxia, and sometimes Ataxia can manifest after trauma.

If you google Chiari, various links come up, you may find these helpful

Log onto brainandspine.org.uk It's possible to put questions to one of their specialist nurses and this could be more useful to you.

If you need further information on Ataxia, contact AtaxiaUK for an information pack.

Best wishes 😊xB

Mother25 in reply to wobblybee9 years ago

Thanks Wobblybee, for the information. I will look into it and find as much information that I can.

Once again, thanks for responding.

Mother25

HarryBAdministrator in reply to Mother259 years ago

I am so sorry you are going through this.

I have nothing to add to Beryl's excellent advice, which I hope you have found helpful.

Best wishes

Harriet

february9 years ago

Dear Mother25, I just want to tell you, I'm so sorry this has happened to you! I cannot add anything to Beryl's advice, as it is very good! My best to you..., ;o)