I have SCA1 and have been attending the London Ataxia Centre for many years. When we are there we make an appointment for the following year. I have just received a letter cancelling my 6th August appointment at 1pm ( we have explained many times we like an early appointment to help with the London traffic). They have offered a new appointment in March at 4pm. This seems to be an awfully long time away and 4pm very late in the day.
I realise that we are very lucky to have these Centres and the doctors are incredibly busy people so I do not like moaning but it would be interesting to know other folk’s experiences. I live nearer to Oxford so I am looking into the possibility of transferring. Does anyone attend Oxford please? Many thanks : )