I was diagnosed with Ataxia 5 years ago, it took them 11 years to diagnose.

[Loza1976]

I was diagnosed with Ataxia 5 years ago, it took them 11 years to diagnose me but they still havent establised exactly which strain of Ataxia I have

I would like to meet people of a similar age to myself, going through the same problems of Ataxia that I face daily.

[wobblybee]

Hi Loza 😊

As a starting point, you could look on AtaxiaUK main site. You'll find a list of peer led support groups, there are quite a few throughout the UK, so chances are there's one within reach of you😊 I'm the contact for Gateshead😊xB

[Loza1976 in reply to wobblybee]

Many thanks

[silkwood]

I am near Salisbury and have a similar story.At 55 fed up with being the worst.Also not sure where to go locally as diagnosed with a sort of CA with elements of this and that.Confused and feel in limboland.

[Loza1976 in reply to silkwood]

Im sorry to hear that.

[babygirl123]

Hi Loza, I have been diagnosed with CA unknown cause, for two years. I am having tests done at the moment at Sheffield, I will be going back for an MRI scan in 2 weeks to see if a cause can be found. I am nearly 48 and live in Hull, Where do you live?

[Loza1976 in reply to babygirl123]

Sorry for the delay. Just got back onto the site, I live in London.

How did the MRI go?

[babygirl123 in reply to Loza1976]

Hi Loza,

I went for my scan it was ok, not heard anything from Sheffield yet. Might hear something soon. Have you found a support group near you yet? I got to one in York, Its nice to meet with other people who have ataxia.

[findlay66]

My husband has cellebellar ataxia not sure of cause either had symptons about 5 years now he is 62 years old now