Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2014

Young PA sufferer, advice needed please

Hi, I would just like advice on whether I have told my daughter the right thing. I Buy methyl privately, my daughter is 22 and was diagnosed with PA soon after...

Hi, I would just like advice on whether I have told my daughter the right thing....

Jcwg

•10 years ago

6 Replies

What tests to get done

My son who is 23 returned for a few days from university as feeling depressed and is always tired I expect he is deficient in B12. He is going to see doctor...

My son who is 23 returned for a few days from university as feeling depressed an...

Sukiwarrior

•10 years ago

3 Replies

ME gets reclassified.

Just been reading that the illness ME/CFS has been reclassified as a neurological illness. I don't begrudge them. What I do begrudge is the fact we have a...

Just been reading that the illness ME/CFS has been reclassified as a neurologica...

Poppet11

•10 years ago

20 Replies

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Am I suffering from lack of Vitamin B12?

Hello everyone. I have joined as I have a number of symptoms which show as possibly vitamin b12dificency. I've had my thyroid tested and it came back within...

Hello everyone. I have joined as I have a number of symptoms which show as possi...

HealthPort

•10 years ago

17 Replies

B12 recovery question

I have been b12 deficient for at 7 years as well with 2 mthfr mutations. The first three years where nausea dizziness fatigue and abdominal pain. My gp didn't...

I have been b12 deficient for at 7 years as well with 2 mthfr mutations. The fir...

cdele6b12

•10 years ago

10 Replies

Vertical nail ridges

Hello, I was reading Martyn Hooper 's story on the PA society site and remembered why PA , amongst so many other possibilities, seemed possible some two years...

Hello, I was reading Martyn Hooper 's story on the PA society site and remembere...

Sian5

•10 years ago

12 Replies

Pernicious Anaemia Awareness Week

Starts today....20 - 25 October 2014 Join us in London for a Coffee Morning this Saturday 25 October 2014 between 10am and 2pm CAN Mezzanine 49 - 51 East...

Starts today....20 - 25 October 2014 Join us in London for a Coffee Morning this...

PASadmin

•10 years ago

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Hosp letter

Just received my letter from the write up of my 2nd visit to haematology which was a couple of weeks ago. Haematologist has wrote into doctors to say that my...

Just received my letter from the write up of my 2nd visit to haematology which w...

Leanneta

•10 years ago

13 Replies

Recovery stagnating. What now?

Hello all. I'm a 30 year old male living in the US. Five months ago, I zeroed in on B-12 deficiency as the most likely culprit of my four years of slowly...

Hello all. I'm a 30 year old male living in the US. Five months ago, I zeroed in...

snakely

•10 years ago

16 Replies

Is there a link between dry eyes and b12 deficiency? If not, has anyone else had any atypical symptoms related to low b12?

After a year of having low b12 I have finally been given permission to get b12 injections! They start in about a week and now more than ever I have been...

After a year of having low b12 I have finally been given permission to get b12 i...

Ctb567

•10 years ago

17 Replies

So fed up with feeling like this...

I have had hashi underactive thyroid for 17 years and following tests in July I have also found I have low B12, low Vit D and low ferritin. I have not really...

I have had hashi underactive thyroid for 17 years and following tests in July I ...

BlueMundo

•10 years ago

5 Replies

New to forum help needed

Hi Guys I am very new to the site and would really appreciate some help and advise as I am terribly confused. My story going back last 2 years is a long one...

Hi Guys I am very new to the site and would really appreciate some help and ad...

Sukiwarrior

•10 years ago

7 Replies

Loading doses

I'm looking for some info on 'loading doses'. I am type 1 diabetic since 1982 and was diagnosed with PA in May 2013 at which time I was experiencing confusion,...

I'm looking for some info on 'loading doses'. I am type 1 diabetic since 1982 an...

Weewull

•10 years ago

10 Replies

Prednisolone

HI, I been on prednisolone for months , reduce the dose gradually to nil 3 weeks ago, now I am feeling very depression is this the tablets and now long doe,s...

HI, I been on prednisolone for months , reduce the dose gradually to nil 3 weeks...

Jane123

•10 years ago

6 Replies

B12 and intestinal parasites

Tried to search this site for any info on a possible connection between B12 deficiency and intestinal parasites, but couldn't find anything. Apologies if this...

Tried to search this site for any info on a possible connection between B12 defi...

BrecklandRanger

•10 years ago

6 Replies

Joint pain with pa

I have been diagnosed with pa several months ago and have been receiving b12 injections monthly. I have been having shoulder, fingers and toe joint pain I know...

I have been diagnosed with pa several months ago and have been receiving b12 inj...

nateoliver

•10 years ago

5 Replies

B12 and cancer

After getting B12 blood test, my doctor who wanted to reduce the frequency of injection and told me that too much of B12 could risk cancer. I am not aware of...

After getting B12 blood test, my doctor who wanted to reduce the frequency of in...

Erainy

•10 years ago

49 Replies

Hot hands & feet after months of cold?

Hello, I do not have a diagnosis of PA, but of primary progressive MS, however I thought I'd try B12, as I am offered no other treatment, and much of my...

Hello, I do not have a diagnosis of PA, but of primary progressive MS, however I...

Sian5

•10 years ago

20 Replies

Bit of a Moan (Sorry)

Hi all i'm new around here and fancied a bit of a moan so if you do have the time to read and give me any feedback it would be appreciated but partly the moan...

Hi all i'm new around here and fancied a bit of a moan so if you do have the tim...

dan91

•10 years ago

20 Replies

Worrying response from haematologist?

I keep browsing the CPD/CME comments section of the BMJ article and came up with this comment: "I have never worked in an area with access to homocysteine or...

I keep browsing the CPD/CME comments section of the BMJ article and came up with...

Poppet11

•10 years ago

4 Replies

Folate and B12 levels

Last year my B12 was 226, but with treatment [ sublinguals ] it went up to 2000. Since then I have been rather complacent and have only been taking them...

Last year my B12 was 226, but with treatment [ sublinguals ] it went up to 200...

bowler

•10 years ago

16 Replies

Help !!

I've had PA gor three years now after going to the doctors with extreme tiredness and numb toes n pins n needles in arms n fingers. I get injections every 12...

I've had PA gor three years now after going to the doctors with extreme tirednes...

tiredkellie

•10 years ago

8 Replies

Methylcobalamin and increased nerve pain

Hi, just wondered if any one else has noticed increased nerve pain when starting Methyl injections, I avent taken any for about 6 months and started again...

Hi, just wondered if any one else has noticed increased nerve pain when starting...

Jcwg

•10 years ago

28 Replies

Loading dose.......?

Hi all, I will probably be zonked out before anyone has a chance to comment on my post but I have a question? I am going to GPs tomorrow morning for a chat...

Hi all, I will probably be zonked out before anyone has a chance to comment on m...

jsteg65

•10 years ago

29 Replies

Another blood test tomorrow

Not really sure why they are testing - it's a week since my last B12 injection (I had one a week for 6 weeks) I'm guessing there will be a fair amount of B12...

Not really sure why they are testing - it's a week since my last B12 injection (...

KTMac

•10 years ago

14 Replies

Tom Brown on Physicians - C1700

The physicians and apothacaries vied for business in the 1700s. Physicians actually had little training in medicines and medications, the majority of their...

The physicians and apothacaries vied for business in the 1700s. Physicians actua...

Poppet11

•10 years ago

14 Replies

Advice Please

Had my loading dose in July and over the last couple of weeks a lot of my symptoms have come back with a vengeance. Have just been back to the Dr. who...

Had my loading dose in July and over the last couple of weeks a lot of my sympto...

wadeyJ

•10 years ago

11 Replies

Acknowledged as ill, or not?

I know that we come from all angles into this illness, but it occured to me that many people are never acknowledged as being ill either before or after...

I know that we come from all angles into this illness, but it occured to me that...

Poppet11

•10 years ago

9 Replies

Anxiety after starting B12

Hi Everyone, this week I started to have extreme anxiety. So far my treatment has only been 1 - 1000ug shot of cyano and some about 6 2500ug methyl tabs. I...

Hi Everyone, this week I started to have extreme anxiety. So far my treatment h...

ilfc

•10 years ago

4 Replies

Could anyone do sit-ups before but not now?

This is something that has always really, really bugged me. Prior to being ill I was brilliant at sit-ups. I used to lie on the bed most nights and see how...

This is something that has always really, really bugged me. Prior to being ill ...

Poppet11

•10 years ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2014

Young PA sufferer, advice needed please

What tests to get done

ME gets reclassified.

Am I suffering from lack of Vitamin B12?

B12 recovery question

Vertical nail ridges

Pernicious Anaemia Awareness Week

Hosp letter

Recovery stagnating. What now?

Is there a link between dry eyes and b12 deficiency? If not, has anyone else had any atypical symptoms related to low b12?

So fed up with feeling like this...

New to forum help needed

Loading doses

Prednisolone

B12 and intestinal parasites

Joint pain with pa

B12 and cancer

Hot hands & feet after months of cold?

Bit of a Moan (Sorry)

Worrying response from haematologist?

Folate and B12 levels

Help !!

Methylcobalamin and increased nerve pain

Loading dose.......?

Another blood test tomorrow

Tom Brown on Physicians - C1700

Advice Please

Acknowledged as ill, or not?

Anxiety after starting B12

Could anyone do sit-ups before but not now?

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