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Another blood test tomorrow

KTMac profile image
14 Replies

Not really sure why they are testing - it's a week since my last B12 injection (I had one a week for 6 weeks)

I'm guessing there will be a fair amount of B12 knocking about

They will also be testing for Vit D & hopefully Zinc as that was low

But it seems a bit pointless as they have already decided I go on to 12 weekly injections

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KTMac profile image
KTMac
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14 Replies
ukangell profile image
ukangell

They shouldn't be testing your b12 but sometimes to test folate they test b12 too. Vit d deficiency goes hand in hand with b12 deficiency.

Can only think they are looking at response to B12 treatment, usually y7our HB rises, MCV should go down in size, white blood cells, platelet count etc should normalise. And yes hopefully they are keeping an eye on folate, and any other issues you may already have had. It can only be a good thing I think to be monitored, Marre.

Poppet11 profile image
Poppet11

Hopefully they are only checking to see if you have had a haematological response to the b12. If your b12 was still through the floor they would have to investigate.

Some people do find though that if their levels are high after an injection then the doctor runs about in a panic.

One doctor, a nice chap, tried to stop my injections (I was self injecting) I thanked him for his advice and carried on regardless.

KTMac profile image
KTMac

& the nurse didn't know what she was testing for

So I said B12,Zinc,vit D, full blood count & thyroid

I'm surei should have added some extras in but I wasn't sure what

in reply toKTMac

You perhaps forgot ferritin and folate as these 2 can go down when B12 treatment has started, but not to worry, it should not be up to you what to test...Marre.

KTMac profile image
KTMac

No I remembered folate at the appointment - just not when I got home :)

How daft

KTMac profile image
KTMac

OK - my GP appointment is next week

The nurse has suggested that they will be moving on to a 12 week injection from then

If the GP does suggest that I think I should say I want an appointment with a haematologist - does that sound sensible? & offer to pay if she isn't keen

It all depends on how you are feeling, you can but try what is offered to you first and then see if its not helping you, then consider how to address that. Or jump the gun, see a haematologist, but be aware a NHS haematologist is stuck with NICE guidance, the only option you can be given is once every 2 months injections instead of 3 if you have neurological problems. Is your GP open for more frequent B12 injections, have you informed of the BNF guidance of once every 2 months maintenance? It all so depends if the B12 injections are working for you, if you have no other deficiencies and how your bloods are I expect..Marre

KTMac profile image
KTMac

I thought if there were neurological symptoms I would have more frequent injections at least to start with

Do pins & needles & neuralgia count as neurological?

KTMac profile image
KTMac

& I am so, so tired

Oh poor you, that one is so recognisable, the so very very tired..its still early days for you, and you may well have other deficiencies playing a part, and or thyroid, they will be testing for that to I expect. You have to tell your GP that you have tingling etc, and yes that is neurological, but it is early days, it took me 3-4 months to notice what good B12 injections do. I hope you will feel a lot better soon and perhaps have other issues addressed should they show up after the blood test. Its up to your GP what treatment you get..Marre.

KTMac profile image
KTMac

3-4 months after they stopped the more regular/loading doses or after your first 12 weekly one?

in reply toKTMac

From start of loading doses, think that was march felt the benefit September, but it was a long time ago. I know I went back to GP saying you have got this wrong, its doing nothing, but also that I had different loading doses. One a week for 6 weeks, then one a month for 3 months to then go onto maintenance every 3 months, it was a long time ago..2001. It can take 3-4 months for blood cells to be replaced with new ones with the increased B12. Marre.

KTMac profile image
KTMac

So I feel better day 2-4 but now I'm on day 9 & I feel wreaked :(

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