edfosho3 months ago

I have recently had a great experience with the speech therapy course Ataxia UK organise. It has really helped with my approach to speaking and the confidence needed for speaking amongst a group, especially with longer sentences and uncommon words. See ataxia.org.uk/support-servi... for more information.

Elizabethtracy in reply to edfosho3 months ago

Thank you I have put my name on the waiting list

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Sea_ in reply to Elizabethtracy3 months ago

I have too, 12 months here. The LSVT course mentioned sounds interesting

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Elizabethtracy in reply to Sea_3 months ago

🙂

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shepskii3 months ago

I am currently seeing a speech therapist. The first 6 sessions were reading words and she said to pronounce every syllable in each word to be understood easier. The last 8 sessions were the ‘LSVT loud’ course. This was aimed at raising my voice so that I didn’t mumble. It also involved using phrases and whole paragraphs. A few people have said that my speech has improved. I now have more confidence speaking.

Elizabethtracy in reply to shepskii3 months ago

Thank you for your reply I knew there must be more to it then seeing a guy for 1 session and being told to read out loud he didn't say anything about pronouncing the syllables your answer has helped a lot. I don't suppose there someone out to write again neatly 😂

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shepskii in reply to Elizabethtracy3 months ago

Hi Elizabeth. My handwriting’s hopeless. I haven’t heard of anything that improves handwriting 🤣

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nigelrheath in reply to Elizabethtracy3 months ago

only practice I’m afraid. Get a lined pad and go for joined up writing. Although you may have lost fine motor control, you still have muscle memory in your hands and fingers. This can be improved but requires practice.

I use my iPad and phone and predictive text. Otherwise I would spend the whole day attempting to hang on to fading skills. I have stopped trying to do everything, I was good at everything! I have a smaller palette of hobbies and use the parts of my brain that are not draining away to find ways of achieving things with much less effort. If that can’t be done I look for something else to do.

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Elizabethtracy in reply to nigelrheath3 months ago

Thank you for your reply its like being back at school which I hated with the exercises from my physio reading aloud from a book for my speech and now practise writing 😂

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nigelrheath in reply to Elizabethtracy3 months ago

I had a look at the parkinsonvoice site and Ithink it’s a useful resource for anyone with voice issues.

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Sea_ in reply to shepskii3 months ago

I’ve a speech therapist from brain injury matters ringing me today as a favour because of the long waiting list so I’ll ask about this it sounds very interesting. My handwriting has become a scribble and I haven’t found anything to help either.

Hope you’re able to find out more about this too shepskii 🤞

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Elizabethtracy in reply to Sea_3 months ago

Maybe we all just need to go back to school 😆😂 my spelling has got worse or if I'm thinking of the next word while writing the first the words get mixed up hard to explain I also forget names of common things 🤔

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Sea_ in reply to Elizabethtracy3 months ago

I got a n adult writing book to see if it helps tracing the letters 😊 and the speech therapist said although no LSVT in Northern Ireland she still has contacts in Sheffield and has heard of it so she’s getting me some information so thank you

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Sea_3 months ago

I’ve asphsia probably misspelled from my brain haemorrhage and my grand nephew has me playing the lingo app and it’s helping 😂 worth a try

Elizabethtracy in reply to Sea_3 months ago

sorry did not reply straight away I will try these things you suggested glad they are working for you

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coat20033 months ago

I AM NOT BORN/BRED Brit.my mother tongue is Slovak.I speak good English.I?In ataxia I see a big difference, my mother tongue is very demanding on rolling letter "r"almost sound Scottish when speaking English.I caught myself on answering machine horrified Im sounded like a demented woman,spoke too slow.avoiding slurring.i am NOW year 7since diagnoses and for ataxia speak perfectly.it all depends on talking and practising. Yes the speech specialist ought to give you words your own slurred speech...my bro who n cannot speak English,only SLOVAK is slurring because he doesn't wanna talk.doesnt consider it important he is less ataxic, but his speech MUCH WORSE comparing to me.speak to your specialist what is available for yourself.some people slur and never had ataxia,just speak too fast and I can confirm it living in Liverpool and people here speak fast.

Elizabethtracy in reply to coat20033 months ago

Thanks for reply good info🙂

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Golden13Mixed3 months ago

Found a great site for help with voice and

speech. Google Parkinson Voice Project

scroll down to Oline Speakout! This is 1/2 hour of practcing along with

a speech/pathologist. If the time slot does not work for you, you can replay

it later. After 10 sessions I can tell a difference in the loudness of my voce.

Elizabethtracy in reply to Golden13Mixed3 months ago

Great thanks I will look at that 😀

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