Speech therapy

[Elizabethtracy]

Does any one with Ataxia see a speech therapy I have had Ataxia for 3 years my speech is slurred and some words I struggle to get out so I asked to see a speech therapy went last week I had to repeat a lot of words after him which was okay as single words come out fine whole sentences are more a problem then he told me to go home and read aloud from a book and would phone me in a month time that it?

I thought he would give me some exercise or something

I wondered what other people have had to do at a speech therapy

[edfosho]

I have recently had a great experience with the speech therapy course Ataxia UK organise. It has really helped with my approach to speaking and the confidence needed for speaking amongst a group, especially with longer sentences and uncommon words. See ataxia.org.uk/support-servi... for more information.

[Elizabethtracy in reply to edfosho]

Thank you I have put my name on the waiting list

[Sea_ in reply to Elizabethtracy]

I have too, 12 months here. The LSVT course mentioned sounds interesting

[Elizabethtracy in reply to Sea_]

🙂

[shepskii]

I am currently seeing a speech therapist. The first 6 sessions were reading words and she said to pronounce every syllable in each word to be understood easier. The last 8 sessions were the ‘LSVT loud’ course. This was aimed at raising my voice so that I didn’t mumble. It also involved using phrases and whole paragraphs. A few people have said that my speech has improved. I now have more confidence speaking.

[Elizabethtracy in reply to shepskii]

Thank you for your reply I knew there must be more to it then seeing a guy for 1 session and being told to read out loud he didn't say anything about pronouncing the syllables your answer has helped a lot. I don't suppose there someone out to write again neatly 😂

[shepskii in reply to Elizabethtracy]

Hi Elizabeth. My handwriting’s hopeless. I haven’t heard of anything that improves handwriting 🤣

[Hidden in reply to Elizabethtracy]

only practice I’m afraid. Get a lined pad and go for joined up writing. Although you may have lost fine motor control, you still have muscle memory in your hands and fingers. This can be improved but requires practice.

I use my iPad and phone and predictive text. Otherwise I would spend the whole day attempting to hang on to fading skills. I have stopped trying to do everything, I was good at everything! I have a smaller palette of hobbies and use the parts of my brain that are not draining away to find ways of achieving things with much less effort. If that can’t be done I look for something else to do.

[Elizabethtracy in reply to Hidden]

Thank you for your reply its like being back at school which I hated with the exercises from my physio reading aloud from a book for my speech and now practise writing 😂

[Hidden in reply to Elizabethtracy]

I had a look at the parkinsonvoice site and Ithink it’s a useful resource for anyone with voice issues.

[Sea_ in reply to shepskii]

I’ve a speech therapist from brain injury matters ringing me today as a favour because of the long waiting list so I’ll ask about this it sounds very interesting. My handwriting has become a scribble and I haven’t found anything to help either.

Hope you’re able to find out more about this too shepskii 🤞

[Elizabethtracy in reply to Sea_]

Maybe we all just need to go back to school 😆😂 my spelling has got worse or if I'm thinking of the next word while writing the first the words get mixed up hard to explain I also forget names of common things 🤔

[Sea_ in reply to Elizabethtracy]

I got a n adult writing book to see if it helps tracing the letters 😊 and the speech therapist said although no LSVT in Northern Ireland she still has contacts in Sheffield and has heard of it so she’s getting me some information so thank you

[Sea_]

I’ve asphsia probably misspelled from my brain haemorrhage and my grand nephew has me playing the lingo app and it’s helping 😂 worth a try

[Elizabethtracy in reply to Sea_]

sorry did not reply straight away I will try these things you suggested glad they are working for you

[coat2003]

I AM NOT BORN/BRED Brit.my mother tongue is Slovak.I speak good English.I?In ataxia I see a big difference, my mother tongue is very demanding on rolling letter "r"almost sound Scottish when speaking English.I caught myself on answering machine horrified Im sounded like a demented woman,spoke too slow.avoiding slurring.i am NOW year 7since diagnoses and for ataxia speak perfectly.it all depends on talking and practising. Yes the speech specialist ought to give you words your own slurred speech...my bro who n cannot speak English,only SLOVAK is slurring because he doesn't wanna talk.doesnt consider it important he is less ataxic, but his speech MUCH WORSE comparing to me.speak to your specialist what is available for yourself.some people slur and never had ataxia,just speak too fast and I can confirm it living in Liverpool and people here speak fast.

[Elizabethtracy in reply to coat2003]

Thanks for reply good info🙂

[Golden13Mixed]

Found a great site for help with voice and

speech. Google Parkinson Voice Project

scroll down to Oline Speakout! This is 1/2 hour of practcing along with

a speech/pathologist. If the time slot does not work for you, you can replay

it later. After 10 sessions I can tell a difference in the loudness of my voce.

[Elizabethtracy in reply to Golden13Mixed]

Great thanks I will look at that 😀

[Sea_ in reply to Golden13Mixed]

I have tried this and their sing along. It’s given me hope as on waiting list from January and apparently it will be next year some time. Thank you so much must bank my voice now too