Does any one with Ataxia see a speech therapy I have had Ataxia for 3 years my speech is slurred and some words I struggle to get out so I asked to see a speech therapy went last week I had to repeat a lot of words after him which was okay as single words come out fine whole sentences are more a problem then he told me to go home and read aloud from a book and would phone me in a month time that it?
I thought he would give me some exercise or something
I wondered what other people have had to do at a speech therapy
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Elizabethtracy
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I have recently had a great experience with the speech therapy course Ataxia UK organise. It has really helped with my approach to speaking and the confidence needed for speaking amongst a group, especially with longer sentences and uncommon words. See ataxia.org.uk/support-servi... for more information.
I am currently seeing a speech therapist. The first 6 sessions were reading words and she said to pronounce every syllable in each word to be understood easier. The last 8 sessions were the ‘LSVT loud’ course. This was aimed at raising my voice so that I didn’t mumble. It also involved using phrases and whole paragraphs. A few people have said that my speech has improved. I now have more confidence speaking.
Thank you for your reply I knew there must be more to it then seeing a guy for 1 session and being told to read out loud he didn't say anything about pronouncing the syllables your answer has helped a lot. I don't suppose there someone out to write again neatly 😂
only practice I’m afraid. Get a lined pad and go for joined up writing. Although you may have lost fine motor control, you still have muscle memory in your hands and fingers. This can be improved but requires practice.
I use my iPad and phone and predictive text. Otherwise I would spend the whole day attempting to hang on to fading skills. I have stopped trying to do everything, I was good at everything! I have a smaller palette of hobbies and use the parts of my brain that are not draining away to find ways of achieving things with much less effort. If that can’t be done I look for something else to do.
Thank you for your reply its like being back at school which I hated with the exercises from my physio reading aloud from a book for my speech and now practise writing 😂
I’ve a speech therapist from brain injury matters ringing me today as a favour because of the long waiting list so I’ll ask about this it sounds very interesting. My handwriting has become a scribble and I haven’t found anything to help either.
Hope you’re able to find out more about this too shepskii 🤞
Maybe we all just need to go back to school 😆😂 my spelling has got worse or if I'm thinking of the next word while writing the first the words get mixed up hard to explain I also forget names of common things 🤔
I got a n adult writing book to see if it helps tracing the letters 😊 and the speech therapist said although no LSVT in Northern Ireland she still has contacts in Sheffield and has heard of it so she’s getting me some information so thank you
I AM NOT BORN/BRED Brit.my mother tongue is Slovak.I speak good English.I?In ataxia I see a big difference, my mother tongue is very demanding on rolling letter "r"almost sound Scottish when speaking English.I caught myself on answering machine horrified Im sounded like a demented woman,spoke too slow.avoiding slurring.i am NOW year 7since diagnoses and for ataxia speak perfectly.it all depends on talking and practising. Yes the speech specialist ought to give you words your own slurred speech...my bro who n cannot speak English,only SLOVAK is slurring because he doesn't wanna talk.doesnt consider it important he is less ataxic, but his speech MUCH WORSE comparing to me.speak to your specialist what is available for yourself.some people slur and never had ataxia,just speak too fast and I can confirm it living in Liverpool and people here speak fast.
I have tried this and their sing along. It’s given me hope as on waiting list from January and apparently it will be next year some time. Thank you so much must bank my voice now too
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