a quick update on my visit to Sheffield ataxia center on Thursday. Let’s say I wasn’t expecting what happened the appointment lasted nearly 3 hours the female neurologist was unbelievably thorough with her examination. My wife and I couldn’t believe it as my normal neurologist appointment is 15 minutes and he’s pushing you out the door. So I had a barrage of blood tests and I’m going back in four weeks for a spectroscopy scan then some further scans on my spine. So once they are in we’ll know a bit more. But my wife is so relieved to finally feel we are being treated fairly and taken seriously. All of our questions were answered best they could. To draw Sheffield thank you.
Take care all stay safe.
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Thanks wobblybee definitely more confident that these folks know what they’re doing but also how you are treated with dignity and respect and that is all we request. 👍🏻
Really good news my friend I think it makes you feel better in itself having been looked after by somebody that seems to care and knows what they are doing gives you a bit more confidence you are in the right hands.
Aup Paul hope you are keeping well, yes the wife and I are feeling a little more optimistic about the near future just for clarification on the type of CA and possibly better treatments than I’ve received if any. But it does go along way in how it effects your mental state once someone listens and gives you their attention and then a future action plan. It won’t take away the struggles we face every day but in the short term I definitely feel that nearly 2 years in I’m starting to make a little progress.
hello piglet3 yes a world of difference to what I’ve been used to as I said we are very optimistic about the future no miracle cures I know but just how we are treated makes all the difference. Take care
Thank you I saw Professor Hadjivassilliou for my first appointment then saw Dr Lo who was rubbish everything I asked her she just looked at me didn't have a answer for anything both appointments didn't last as long as yours both just said see you in a years time because they don't know what has caused mine I feel like they cam not be bothered next appointment is in May so will see what's happens glad you got some joy from your appointment
Hello Elizabethtracy sorry to hear about your negative experience with Dr Lo that’s half the problem with seeing different neurologists each appointment. I hope you have a better experience in May. Stay strong
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