This is a drug which has been mentioned here numerous times over the years, but may finally have some real results. Unfortunately this post is likely not relevant to most posters here, but for those people with an inherited form of SCA who are just beginning to see symptoms or who have no symptoms and only a genetic test, there is a clinical trial which hopefully will be publishing results sometime soon that may be of interest. The trial was done in South Korea, and I received an email from a patient that posted on this site years ago regarding the drug. In that email he said that he and the patients like him had had no progression for the time they have been taking Tasigna. Let's hope the results are published sooner rather than later, and the email I got was true. The moment I hear or read anything else I will be sure to post it.
Nilotinib/Tasigna for SCA 1,2,3,6,7, and 17 pati... - Ataxia UK
Nilotinib/Tasigna for SCA 1,2,3,6,7, and 17 patients with low to no symptoms.
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Despite clinical trials for this drug, currently it’s primarily prescribed for cancer related diagnosis’s.. The study started in 2018, and was expected to be completed in 2020.
Nilotinib is used to treat certain types of chronic myeloid leukemia (CML; a type of cancer of the white blood cells) who have recently found to have this condition in adults and children 1 year of age and older.15 Dec 2021
medlineplus.gov › meds
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