Riluzole

[1-0-1]

Hi

Has anyone had any positive effects from taking riluzole? I have read that it stops the ataxia symptoms worsening. I know there is a trial in USA at the moment. Does anyone know how this is going?

Thanks

[pollybanana]

What is riluzole?

[1-0-1 in reply to pollybanana]

It's a drug currently used for other conditions but it is being trialled for ataxia

[Tiggywinkles]

Hello,

I saw a new consultant earlier in the year and he mentioned Riluzole to me as a possible drug to try for FA - it is currently used for Motor Neuron Disease - but as yet I haven't tried it. Have you had it suggested to you?

[pollybanana in reply to Tiggywinkles]

No, I have not heard of it or been offered any treatment. I was only diagnosed last year and the cause my ataxia has not been found. I see my neurologist again in October.

[1-0-1 in reply to Tiggywinkles]

No. I just came across information about the trials and wondered if anyone else had more information about it

[HarryB Administrator]

Hi

Here is a previous conversation about riluzole that you may find helpful.

healthunlocked.com/ataxia-u...

Best wishes

Harriet

[wobblybee]

🙂The final results will be available early 2018

As I understand it, Trigriluzole is better absorbed by the liver🙂

Several members on Living with Ataxia have been involved in the trial, some were given a placebo but that's something you need to accept if taking part. 🙂xB

[neta in reply to wobblybee]

I didn't know this about riluzole. XX N

[LoriGiotas]

I take this. Neurologist said my walking is better than 6 months ago.