Anyone else experiencing : With Ataxia I'm... - Ataxia UK

Ataxia UK

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Anyone else experiencing

murcia profile image
5 Replies

With Ataxia I'm experiencing tummy pain &back pain also can't explain as if your muscle are moving espically when your led down also get eiposodes of feeling hot.

Just wondering

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murcia profile image
murcia
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5 Replies
wobblybee profile image
wobblybee

😏 I don't know which is worse, being too hot or too cold. I often fluctuate between the two, with icy cold feet in the middle of summer🤔 And, hot flushes when you think you've seen the last of them🙄 There may be something by way of medication, it's worth speaking to your GP🙂 GPs don't always show in a good light when it comes to ataxia queries, look on ataxia.org for a list of Medications for Ataxia Symptoms. And, ask for advice about your tummy/back pain while you're there, we're told to remember that not everything is attributed to ataxia🙂xB

murcia profile image
murcia in reply towobblybee

Pain suspected gall stones if haveny got enough to put up with

wobblybee profile image
wobblybee in reply tomurcia

🙄 Been there, I empathise. At the time (and now actually) I was overweight, and preferred to have keyhole surgery if at all possible. While waiting to have it done I had several bouts of incredible pain, it really has to be experienced😕 By the time my operation rolled round I had managed to lose weight and the keyhole surgery was a success (and relief). I was having ataxia symptoms but hadn't been diagnosed, the anaesthetic didn't have any bad effect and recovery time was good🙂xBeryl

Shahidzak profile image
Shahidzak

I got told a few months ago that I have Ataxia my whole body hurts .ihave to go to the dentist not a big fan is it ok people with ataxia to go .

Sorry if it's a silly question

murcia profile image
murcia

Of course no problem

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