Hi, I'm Nigel (new member), age 67, retired. I have CA of unknown type but I'm told there is a link to SCA5. We thought I'd got mitochondrial disease but now we’re not so sure!
Got myself a wheelchair a few years ago and, recently, a pair of Nu-drive lever drives which allow me to propel the chair with a ‘rowing’ movement rather than use the rims. When attempting the latter, I tend to catch my fingers in the spokes (side effect of CA?).
I got the levers in an Ebay auction as they are very expensive new. These were sold without the ‘lever stops’ which attach to the frame and stop the levers falling to the ground when not in use. I am using some coach bolts screwed into motorcycle handlebar mirror clamps. A cheap temporary solution. This enables me to get out and use the levers. They are not a long term solution, though, as the stops need too retract or fold out of the way when taking the levers off to travel by public transport.
Does anyone know of a source of the ‘official’ lever stops or know of anything that would do the job.