I have a problem when out in my new manual wheelchair, and am just wondering if it is typical of ataxia and/or Miotchondrial disease (which I have a diagnosis of).
I am fine on level surfaces, totally panic stricken going down a slight slope (feels like I am nose diving/falling away), and all at sea on the sloping surfaces along pavements and shopping areas. It's so bad that I try to lean in the opposite direction sideways to kind of compensate for the drift of the wheelchair. I can wheel myself along the slopes but the imbalance is just too much. According to my hubby I am over-compensating but it feels awful to try and sit straight. And when he tips me back to go over a shop threshold I totally lose it, bit like passing out.
He is of the opinion that I can train my brain to deal with these slopes but I am sure that isn't right.
Do folk with ataxia have these problems that seem much worse than for 'normal' wheelchair users?
The good news is that I have lost my bingo wings!