wrikly finger tips?: I get wrinkly finger tips and... - Ataxia UK

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wrikly finger tips?

scruffycat profile image
8 Replies

I get wrinkly finger tips and cold feet.

Is this common to anyone?

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scruffycat profile image
scruffycat
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8 Replies
jill55 profile image
jill55

I think you will find you are suffering from POTS, postural orthostatic tachycardia the reason your finger tips are wrinkled is because you are not holding onto fluids. Cold feet, circulation disorder. POTS is diagnosed with a Tilt table test. Both my daughters suffer from this as well as other health problems. My eldest daughter has a well received blog themyastheniakid where she talks about her various illnesses. She has many Drs who follow her.POTS is a hit and miss illness as to regards to which Drs believe that anybody but the elderly can have it. My daughters are aged 42 and 39. The youngest originally diagnosed with M.E at 14 many people who were originally diagnosed with M.E are now recognised to have POTS. I hope this will point you in the right direction to obtain treatment.

scruffycat profile image
scruffycat in reply tojill55

WORTH A BIT MORE INVESTIGATION

HarryB profile image
HarryBAdministrator

Hi scruffycat

I can't explain the wrinkly finger tips but cold feet are a relatively common problem in ataxia as are cold hands. Both can be explained by poor circulation to the peripheries of the body.

Harriet

scruffycat profile image
scruffycat in reply toHarryB

It must have something to do with the heart? What about this Hypertrophic cardiomyopathy I’ve read about? Or is that just Fredericks Ataxia

HarryB profile image
HarryBAdministrator in reply toscruffycat

The hypertrophic cardiomyopathy (HOCM) is just for Friedreich's ataxia. I am not sure of the underlying explanation. Although I think the fact those with ataxia are less physically active contributes.

scruffycat profile image
scruffycat in reply toHarryB

Got a new docter, she's arranged an ECG for next week.

scruffycat profile image
scruffycat

ECG in the bag. Heart rate of 57 bpm. Trip to sleep clinic shows it falls 50, when I'm asleep

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scruffycat

Does the answer lie here?   epainassist.com/sports-inju...

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