In reading through the posts on this site, with the exception of occasional mentions of spouses, parents and children, I have not noticed many people mention that they had discussed their physical problems with other relatives, friends or acquiaintences. In my situation, I suffered a severe right leg injury at about the same time that I began to notice my Ataxia symptoms, So, it became easy for me to pretend that my Ataxia symptoms had been a result of my fall. I have never been all that close to my relatives, and I never had many real close friends, so I am not sure that it would have been appropriate to try to make them understand my Ataxia. Nonetheless, I felt very relieved that I never found myself in the situation of having to explain to very many people the real reasons for my having to use a cane or a walker. I have been wondering if some of you might be hesitant to talk about your Ataxia with relatives, and other persons that you know, and what might be the main reason that you would avoid discussing your Ataxia with relatives, or with other persons who know you. I know that the things that go through my mind when I start thinking about telling someone about my Ataxia are that they probably think that I am looking for sympathy, or some kind of help from them, and they would be scared that they would not know what to say because they know so little about Ataxia. It also enters my mind that they might become afraid to go anywhere with me because of the risk that they might accidently cause me to become injured. At the very least, I think that they might want to avoid me simply because they would not know what to talk about with me. Does anyone else get those same feelings? If you do, how do you deal with them?
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