Improving diagnosis, and management of Gluten Ataxia.

[wobblybee]

🙂People in the UK

Improving diagnosis and management of Gluten ataxia

Ataxia UK, Coeliac UK, and the Sheffield Hospitals Charity have awarded funding to Professor Marios Hadjivassiliou and colleagues at the Sheffield Ataxia Centre, for a research project to help improve the diagnosis and management of gluten ataxia.

The project aims to allow the referral of any patient with progressive ataxia without a diagnosis, to be tested with the appropriate blood markers available in clinical practice in Sheffield.

If you have had tests to rule out other types of ataxias and still do not have a diagnosis of the cause of your ataxia, you can be referred to the Sheffield Ataxia Centre to be tested for gluten ataxia.

If you are diagnosed with gluten ataxia, you can take part in the study, where you will follow a strict gluten-free diet.

Participants will then be followed up after one year to assess the impact of the gluten-free diet.

If you are eligible to take part in this study and attend one of the following ataxia centres, you can be referred to the study via the below contacts:

Oxford: email Professor Andrea Nemeth on [e-mail]

London: email Professor Paola Giunti on [e-mail]

Sheffield: email Dr. Priya Shanmugarajah on [e-mail]

Manchester: email Dr. John Ealing on [e-mail]

Romford: email Dr. Rajith de Silva on [e-mail]

If you do not attend any of the above sites, your neurologist can refer you directly to Prof Marios

Hadjivassiliou by emailing [e-mail].

[penelope2]

So it seems that if you have a diagnosis of ataxia you can contact Sheffield.As long as you haven't a diagnosis of what type?

And if you have gluten ataxia too?

Surely it's only Sheffield anyway that can give a positive diagnosis of GA?

As only at Sheffield do they do full spectrum of tests for GA so people will be under their care anyway?

That is rather a confusing message to give.

[penelope2 in reply to penelope2]

I have just reread your post for the 4th time and you are saying that:If you THEN test positive you will be monitored and can take part in the study.

Apologies it was my fault, so they are looking for participants that have NOT yet had a ga diagnosis. It makes sense now.

As with gluten causing ataxia time is critical to try to limit damage to the cerebellum, then this is very welcome.

Thank you.