TG6 and gluten ataxia

[cyclist49]

I was diagnosed with Idiopathic Cerebellar Ataxia in 2018 and had all the usual tests which proved negative . My neurologist in Aberdeen recently managed to arrange a TG6 blood test in Sheffield . The result was 4.2 U/ML , and a result >4 is positive.I have none of the usual symptoms of celiac disease or gluten intolerance . I am aware that it is important that a gluten free diet must be very strict, and as I am at the beginning of this journey I would be very interested to hear from other people who have had a positive TG6 test and their experience of undertaking a gluten free diet either positive or negative

[Rezzy3]

I’ve been gluten free for about 4 years. I was postive like yourself but also found out later I have SCA6 I think.

Didn’t think the gluten free diet helped until I had a moment of weakness and grabbed a slice of pizza and fried chicken. Felt like I was drunk for three days.

Gluten free diet, exercise, acupuncture and some mindfulness and I was able to lose the walking stick. I just did my yard work the other day. Cut grass, edging and blowing scraps. It helps a ton and it doesn’t hurt until you crave one of your favorite pasta meals.

Good luck to you!

[cyclist49 in reply to Rezzy3]

Thanks Rezzy3