my Ataxia: Hello my friends, if I may address you... - Ataxia UK

Ataxia UK

4,055 members4,609 posts

my Ataxia

Veteran250 profile image
3 Replies

Hello my friends, if I may address you as such…….I was diagnosed with Ataxia by my Neurologist in Febuary this year, although I’ve had the symptoms for as long as I can remember, but he didn’t say which Ataxia it is?

my elder Brother told me recently, when I was born, I had body tremors, and looked like a skinned rabbit…….. to my knowledge, no other member of my family had Ataxia, and I was the youngest son of seven sons.

I have to use furniture, walls and doorframes to get around indoors, and it doesn’t help having Dropped Foot Syndrome.

My local council recently asked me if I still needed the Disability Parkin bay outside my house, and will my condition improve?? What don’t they understand when I tell them there’s no cure, and Ataix will only get worse.

I apologise for a long post.

Don(Veteran250) 🫥🌞😀😎

Written by
Veteran250 profile image
Veteran250
To view profiles and participate in discussions please or .
3 Replies
MaggieSylvie profile image
MaggieSylvie

Hi Don, Isn't it anger-making when these idiots ask silly questions like that. In any case, I believe that even if you weren't disabled, outside your house you should have a parking bay. When are they going to cut the c**p and give elderly people their dues? I'm happy to say that today I got the good news that I have been awarded blue badges. It's a Saturday so I can't pay for it today and get that bit out of the way. I have to wait until Monday when I have plenty of other things to do.

When they come to renew them I'll be five years older and while the latest wedge fracture may have healed, I might well have had another one by then. If not follow in my cousin's footsteps and have a crumbling spine. The only end to pain is well . . .

wobblybee profile image
wobblybee

🙂 Hi Don…it’s ages since we heard from you…I hope you are ok…apart from the irritating parking bay issue.

If you feel you need ‘back-up’ with this issue…you could ring the Helpline at AtaxiaUK. They can offer advice about all sorts of problems.

ataxia.org.uk/support-servi...

paul456 profile image
paul456

Stay strong my friend and fight for what is your right. You have a disability that cannot be cured and gets worse as time goes on.

That’s more than enough to get a parking space.

Stay well my friend and keep fighting 💪🏻

You may also like...

Ataxia - my description

Ataxia I slur my words; I cannot write, not even sign my name. I drop my food; need help to bathe

My family does not want to be tested for Ataxia

I have ataxia, but do not know what kind. My brother has canvas, but never officially tested for it

Cerebellar Ataxia of my 3 Year old son

Hello. My son was diagnosed with genetic cerebellar ataxia. I want to create a community for people...

How I describe my diagnosis of ataxia

🤔 For me, ataxia is so much more than a problem with balance and co-ordination. It interferes with

Heat and my ataxia

C degrees and higher seem to greatly worsen my ataxia - my first experience was in 32 degree C...