my Ataxia

[Veteran250]

Hello my friends, if I may address you as such…….I was diagnosed with Ataxia by my Neurologist in Febuary this year, although I’ve had the symptoms for as long as I can remember, but he didn’t say which Ataxia it is?

my elder Brother told me recently, when I was born, I had body tremors, and looked like a skinned rabbit…….. to my knowledge, no other member of my family had Ataxia, and I was the youngest son of seven sons.

I have to use furniture, walls and doorframes to get around indoors, and it doesn’t help having Dropped Foot Syndrome.

My local council recently asked me if I still needed the Disability Parkin bay outside my house, and will my condition improve?? What don’t they understand when I tell them there’s no cure, and Ataix will only get worse.

I apologise for a long post.

Don(Veteran250) 🫥🌞😀😎

[MaggieSylvie]

Hi Don, Isn't it anger-making when these idiots ask silly questions like that. In any case, I believe that even if you weren't disabled, outside your house you should have a parking bay. When are they going to cut the c**p and give elderly people their dues? I'm happy to say that today I got the good news that I have been awarded blue badges. It's a Saturday so I can't pay for it today and get that bit out of the way. I have to wait until Monday when I have plenty of other things to do.

When they come to renew them I'll be five years older and while the latest wedge fracture may have healed, I might well have had another one by then. If not follow in my cousin's footsteps and have a crumbling spine. The only end to pain is well . . .

[wobblybee]

🙂 Hi Don…it’s ages since we heard from you…I hope you are ok…apart from the irritating parking bay issue.

If you feel you need ‘back-up’ with this issue…you could ring the Helpline at AtaxiaUK. They can offer advice about all sorts of problems.

ataxia.org.uk/support-servi...

[paul456]

Stay strong my friend and fight for what is your right. You have a disability that cannot be cured and gets worse as time goes on.

That’s more than enough to get a parking space.

Stay well my friend and keep fighting 💪🏻

[Veteran250 in reply to paul456]

That’s me Paul, get out and enjoy life, until my last day on this earth, taking a weeks vacation down in the West Country on 7th July.

[paul456 in reply to Veteran250]

Good for you my battle partner hope you have a great time.

[Sherena in reply to Veteran250]

That's my birthday! I'll be 39, what's your secret to being so full of life - despite life's setbacks. Mine is my faith.

[Veteran250 in reply to Sherena]

Hi Sherena…… I have too many medical problems to mention here, most are controllable, most are curable, but one has no known cure….. I am 80 years old now, I tend to put my medical problems to the back of my mind and get on with living my life as best I can.

I am thankful for waking every morning, I get through by enjoying music, I used to post music here, and got a good response from other members, but one member complained to Admin saying musin was inappropriate for this site, Admin banned me from posting music

Like you, I get out and about in my power-chair

Take care and stay safe.

Don..

[orange33]

sorry about my email, unfortunately the shaking got the better of me and replied before had a chance to end my post. Please excuse my mistake.. All the very best done and thank you for your lovely posts

[PatsyIpswich]

Good to hear from Don xx