Immunoglobulin

[Athywhite]

Hi all, not posted for a while, just been 'getting on with it', I had an appointment with my neurologist's team yesterday and she said they are putting me on immunoglobulin in the New Year, probably February as I am only priority 3, the way she explained it seems like there is a possibility I may be able to walk a bit again, has anyone else had this treatment and did it work?

[wobblybee]

🙂I’ve seen posts on Facebook Ataxia Support Groups..It can be variable patient to patient

[Athywhite in reply to wobblybee]

Yes, the nurse told me that, I just wondered if anyone had had any similar treatment and had it worked

[Maldrakes]

What will the immunoglobulin do?

[wobblybee in reply to Maldrakes]

ataxia.org.uk/research-news...

[PatsyIpswich]

I asked for it but was told not appropriate for me. Good luck anywhere worth a try x

[penelope2]

Does this mean you have an autoimmune type of ataxia? This means your autoimmune system has gone into disarray, caused by something your eating, in your environment, exacerbated by stress or trauma. Could be any of these or a combination of different factors or perhaps something else?Maybe it's not autoimmune, I do wish the doctors would explain more, we need to understand so we can help ourselves as much as possible.

Forget GPs, they have very little knowledge but can you question the consultants more?

Good luck.

[isabelalfaiate]

I had immunoglobulin in my thirties (no ataxia symptoms then) because i kept on having bronchitis weekly and antibiotics were no longer effective. I have never had bronchitis since that shot. It may work for you, hope so. best wishes

[coat2003]

i am allergic as an ataxian.my gp in Slovakia always requested levels as i have eczdema, allergies.am i NOT BLESSED AN ATAXIA ALSO...no, i cannot answer as quite further with ataxia inhereted type sca 2.but it puzzled me...i'd love to hear more. and Wobbly bee is very right.