Ask the Expert……A Webinair with Consultant Neuro... - Ataxia UK

Ataxia UK

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Ask the Expert……A Webinair with Consultant Neurologist Dr Susan Perlman

wobblybee profile image
12 Replies

🙂 I logged onto this at the time

It was informative and fast moving..Dr Perlman answered preset questions clearly and was easily understood

In November, NAF hosted another “Ask the Expert” webinar with Dr. Susan Perlman to answer your questions about Ataxia. It has been now uploaded to YouTube! You can now watch it on NAF's channel here: youtu.be/B9DrYDRbaro

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wobblybee profile image
wobblybee
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12 Replies
Telegraphist profile image
Telegraphist

Very informative. Thanks for posting.....

Eunseoc profile image
Eunseoc

Thanks! I'm sorry that I'm not a native English speaker. Did she mention about trehalose??

Im curious about the medication!!

Eunseoc profile image
Eunseoc in reply to Eunseoc

Oh susan is a male...

wobblybee profile image
wobblybee in reply to Eunseoc

🙂 Dr Perlman answered up to 50 preset questions from people who had logged onto the Webinair..but nobody had asked about Trehalose..it wasn’t mentioned at all

clinicaltrials.gov/ct2/resu...

Ostap profile image
Ostap in reply to wobblybee

I thought I heard it mentioned at 4.45.

wobblybee profile image
wobblybee in reply to Ostap

At that point..she was answering a question related to Episodic Ataxia Type 2

Ostap profile image
Ostap in reply to Eunseoc

it was mentioned @ 4.45 I believe.

wobblybee profile image
wobblybee in reply to Eunseoc

🙂 I thought you might be interested in this..copied from The National Ataxia Foundation

Trehalose is in the pipeline

To view the pipelines ataxia.org/pipeline

Eunseoc profile image
Eunseoc in reply to wobblybee

Thanks!! I really wish a cure comes sòon

hkessler profile image
hkessler

She is a rock star! I have been seeing her for the last ten years.

Psalm119 profile image
Psalm119

I also found this very interesting and helped me a lot. Of course not everything mentioned was relevant, but some information was spot on- for me.

wobblybee profile image
wobblybee in reply to Psalm119

🙂 Log onto this link to see informative videos, and other Webinairs hosted by Specialist Neurologists

youtube.com/results?search_...

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